The United Mitochondrial Disease Foundation is committed to increasing funding for mitochondrial disease research now – to alleviate the suffering of thousands who have this debilitating and often fatal disease and to develop better understanding of and treatments for the many common illnesses and chronic conditions associated with it.
To expedite this action and ensure Congress, the medical community and the general public understand the importance of mitochondrial disease research, we must call on our the affected community, their friends and families, to advocate for all.
Concerned about “Replace and Repeal” of the Affordable Care Act?
We want you to know that the current process of “repealing and replacing” the Affordable Care Act (ACA), also known as Obamacare, is of great concern to UMDF. Click here to see our position on “Replace and Repeal”. Many who suffer with mitochondrial disease have historically experienced difficulties obtaining affordable health care coverage. The requirements of the ACA regarding robust coverage of those with pre-existing conditions under family, individual and small group plans has been particularly important for many patients and families.
While UMDF’s preference would be to leave the ACA’s current coverage scheme in place and work on sensible modifications to address premiums, coverage and other issues, we recognize that Congress and the President are likely to make more dramatic changes. You can rest assured we will be advocating for this issue on your behalf on Capitol Hill. However, during this process, let your voice be heard. Click here to visit the UMDF Advocacy Action Center and send a letter to your Congressman and U.S. Senators asking them to consider some important issues affecting mitochondrial disease patients and families as they work to repeal and replace the ACA.