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UMDF Statement on Charlie Gard

2017-07-03T19:32:37+00:00

UMDF Statement on Charlie Gard Our hearts go out to the Gard family in the U.K. They are in a position that no parent should ever have to experience and our thoughts are with them. Clinicians and researchers around the globe are tirelessly working to find faster diagnosis, effective treatments and ultimately a [...]

UMDF Statement on Charlie Gard 2017-07-03T19:32:37+00:00

U.S. Health and Human Services to provide more information about clinical trials

2016-11-02T18:20:24+00:00

U.S. Health and Human Services takes steps to provide more information about clinical trials to the public In an effort to make information about clinical trials widely available to the public, the U.S. Department of Health and Human Services today issued a final rulethat specifies requirements for registering certain clinical trials and submitting summary results [...]

U.S. Health and Human Services to provide more information about clinical trials 2016-11-02T18:20:24+00:00

NORD Publishes Physician Guide to Mitochondrial Myopathies

2016-11-02T18:20:24+00:00

National Organization for Rare Disorders and Rare Disease Experts Publish Guide to Promote Diagnosis and Treatment for Patients DANBURY, CT--(Marketwired - June 28, 2016) - As part of its ongoing series to promote physician awareness of rare diseases, the National Organization for Rare Disorders (NORD) has published a Physician Guide to Mitochondrial Myopathies, available free [...]

NORD Publishes Physician Guide to Mitochondrial Myopathies 2016-11-02T18:20:24+00:00

UMDF Awards Half Million Dollars in Research at Mitochondrial Medicine 2016

2016-08-29T15:59:41+00:00

(Seattle, WA) The United Mitochondrial Disease Foundation awarded $500,000 in research grants to projects designed to bring faster treatments and cures for mitochondrial disease patients. The grant awards were presented at the UMDF’s Mitochondrial Medicine 2016: Seattle symposium. The following grants were presented by the UMDF following the recommendation by the grant review committee. Brendan [...]

UMDF Awards Half Million Dollars in Research at Mitochondrial Medicine 2016 2016-08-29T15:59:41+00:00

UMDF Volunteer Awards Announced

2016-11-02T18:20:24+00:00

At its 20th Anniversary Banquet at Mitochondrial Medicine 2016, the United Mitochondrial Disease Foundation (UMDF) honored several of its volunteers for their role in helping the entire mitochondrial disease community move closer to treatments and cures.  The awards were presented by UMDF Executive Director and CEO Charles A. Mohan, Jr., and Patrick Kelley, UMDF's Chairman of [...]

UMDF Volunteer Awards Announced 2016-11-02T18:20:24+00:00

Community Reacts to Stealth BT Encouraging News

2016-11-02T18:20:24+00:00

Stealth BioTherapeutics announced positive results from its MMPOWER mitochondrial myopathy trial Mitochondrial disease organizations across the United States and Canada are thrilled with the results. "Today's news from the Stealth BioTherapeutics trial represents far more than data -- it provides hope for every adult and child with mitochondrial disease," said Cristy Balcells, RN MSN, Executive [...]

Community Reacts to Stealth BT Encouraging News 2016-11-02T18:20:24+00:00

Stealth Bio Therapuetics Reports Positive Data

2016-08-29T16:06:04+00:00

Stealth Bio Therapeutics Reports Positive Data in First-Of-Its- Kind Primary Mitochondrial Myopathy Trail. Announcement made at the UMDF's Mitochondrial Medicine 2016 Symposium in Seattle See Details Here

Stealth Bio Therapuetics Reports Positive Data 2016-08-29T16:06:04+00:00

Mitochondrial Myopathy Trial

2016-11-10T16:46:51+00:00

  Stealth BioTherapeutics announced the start of a new clinical trial for patients with Mitochondrial Myopathy. On February 13, 2015, Stealth BIOTHERAPEUTICS CEO Travis Wilson detailed the new clinical trial, outlined which patients are eligible, and other important details. CONTACT THE CLINICAL TRIAL CALL CENTER:  1-877-224-6518 You may read the news release about the trial [...]

Mitochondrial Myopathy Trial 2016-11-10T16:46:51+00:00