Courageous Parents Network interviewed a couple about how their faith affected end of life decisions for their infant daughter following her sudden diagnosis with Leigh’s disease.Cliff Gorski2018-09-13T16:30:31+00:00
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Earlier this summer, I had the opportunity to meet with several children with serious medical issues and their families. They traveled to Washington, D.C., to meet with members of Congress to discuss the continuing and difficult challenges children with complex medical conditions face in getting care. As I return from August recess and children [...]
From the University of Arkansas Collaborative Research Earns Recognition for Graduate Students Studying Mitochondrial Disease Aug. 15, 2018 Photo Submitted l-r: Olivia Kolenc and Aji Bakare Interdisciplinary collaboration is paying off for two University of Arkansas doctoral students. Biomedical engineering student Olivia Kolenc and Biological Sciences student Ajibola Bakare each received recognition at conference presentations based on their [...]
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Wrinkles and Hair Loss Reversed through Mitochondrial Restoration From Genetic Engineering and Biology News Skin wrinkles and hair loss are two of the most commonly bemoaned signs of aging, but a team at the University of Alabama at Birmingham (UAB) has now demonstrated how both of these telltale features of passing years can be [...]
(Nashville, TN) At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2018, the United Mitochondrial Disease Foundation recognized four individuals for their efforts to spread awareness about mitochondrial disease. During the June 29, 2018 banquet, the UMDF honored Gail Wehling of Wayne, IL, the prestigious Stanley A. Davis Leadership Award. The award is presented [...]
FOR IMMEDIATE RELEASE June 25, 2018 Contact: Clifford F. Gorski UMDF Director of Communications 412.793.8077 – firstname.lastname@example.org (Pittsburgh, PA) The United Mitochondrial Disease Foundation (UMDF) announced that its board of trustees chose Brian Harman as the organization’s next chief executive officer and president. Harman will begin his new role with UMDF on July [...]
CHOP Researchers: Patient-Centric Perspective Offers Key Insights into Upcoming Treatment Studies Philadelphia, June 6, 2018 – As clinical trials gear up with the aim of attaining the first FDA-approved treatments for mitochondrial disease, a new study reports for the first time what patients and families say would motivate them for or against participating in [...]
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