Awareness Week 2017-09-15T11:44:15+00:00

Mitochondrial Disease Awareness Week is celebrated globally to educate and increase awareness about mitochondrial disease. Awareness week is celebrated annually during the third week of September.

During this week, affected individuals, their families, friends, co-workers and fellow students join together to sponsor a variety of events to promote outreach and education about mitochondrial disease and the broader impact of mitochondrial dysfunction on human health.

This year,  Mitochondrial Disease Awareness Week will be held September 17-23, 2017.

Tell your story to your community

Speak to community groups and organizations.
An easy way for you to spread awareness is to schedule a speaking engagement before a community organization. You will have the opportunity to tell your story, educate the audience about mitochondrial disease and dysfunction, and share with them the progress that UMDF has made. If this is something of interest to you, contact the UMDF at 888-317-8633 for tools and information that will be appropriate for your audience.  You can also contact your
UMDF Regional Coordinator. Click here to see our Regional Coordinators and their contact information.

If you live in one of the following states:
– Montana
– Idaho
– Utah
– Wyoming
– Colorado
– New Mexico
– California
– Arizona
– Nevada
– Oregon
– Washington

Contact Tania Hanscom at 888-317-UMDF (8633) to discuss your planned Awareness Week event.

Set up an information booth in a mall, school, health fair or other community event.

See if you can get permission to set up a display that has information about mitochondrial disease and dysfunction. Use the opportunity to talk about your personal connection to the disease and how people can help the UMDF provide the ongoing research that accelerates us down the path towards a cure.
Call us so that we can determine the best information for your booth.  888-317-8633

Tell your story to the media

Raise awareness by reaching out to your local media.

Ask them to do a story on mitochondrial disease and dysfunction. Awareness in the media comes in many forms.  It could be a story on your local television newscast.  Or, a print reporter may want to do a story on you or your family.  If you are interested in spreading awareness through the media, you need to start working on that now.  Below are some tools to help you get started.

Working with the Media– (PDF)
Information on how to contact the media to promote stories and information happening in your community

Communicating our Message (PDF) Information to prepare you to talk about mitochondrial disease and about the UMDF .

Writing a Letter to the Editor– (PDF)

Tell your story on Social Media

Raise awareness by sharing stories and information via social media.

Post on social media that it’s  Awareness Week!  Download a post here.

UMDF will be posting heavily throughout awareness week. Please “like” and “share” our posts with your friends.

Ask the question “How much do you know about mitochondrial disease? Learn more at www.umdf.org.”  Let’s see how many hits our website gets during awareness week.

Celebrate Globally!

UMDF is a member of International Mito Patients (IMP), which aims to secure 55 landmarks to mark the 55th anniversary of the first diagnosis of mito.  The buildings will be lit green – the international color of mito.  To beat the world record, at least 38 monuments must be lit for at least ten minutes over the 24 hour period. The event will begin on September 16, 2017.

We are delighted that [monuments] will join global icons including Niagara Falls and the Colosseum.

You can help raise awareness about mitochondrial disease this Awareness WeeK.

  • If you live nearby a participating monument, head down and take a photo! Share your pictures and information about the campaign on social media using #lightupformito and #GWR2017
  • Install a green light bulb outside your home and/or workplace and share the photo on social media using the hashtags
  • Upload a temporary profile picture of a green ribbon to your social media accounts

Thanks for supporting Light Up for Mito and Global Mitochondrial Disease Awareness Week.

Click on the candle to light one in memory or in honor of a family member or friend!

Help fundraise towards a cure!

Conduct a Coins for a Cure Campaign

Place coin collection containers in your school, church or local business for a designated period of time. No amount is too small to propel us down the path towards a cure. Contact our Special Event Department by email at events@umdf.org or by phone at 888-317-8633 if you would like to hold an Awareness Week “Coins for a Cure” Campaign

Conduct a Light Bulb Campaign

The UMDF will provide you with light bulb paper cutouts that can be sold for a dollar at a local restaurant and placed on a designated wall or window to raise awareness. Contact our Special Event Department by email at events@umdf.org or by phone at 888-317-8633 if you would like to hold an Awareness Week “Light Bulb” Campaign.

Participate in an Energy for Life Walkathon Near You

To see the nearest EFL Walk, visit www.energyforlifewalk.org