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Blog Medium Image 2016-11-02T18:20:24+00:00

UMDF Honors Volunteers with Top National Awards

(Nashville, TN)   At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2018, the United Mitochondrial Disease Foundation recognized four individuals for their efforts to spread awareness about mitochondrial disease. During the June 29, 2018 banquet, the UMDF honored Gail Wehling of Wayne, IL, the prestigious Stanley A. Davis Leadership Award.  The award is presented to a UMDF volunteer leader [...]

By | June 30th, 2018|Categories: Uncategorized|0 Comments

Board of Trustees Names Brian Harman CEO/President of UMDF

FOR IMMEDIATE RELEASE June 25, 2018 Contact:  Clifford F. Gorski UMDF Director of Communications 412.793.8077 – cliff@umdf.org   (Pittsburgh, PA) The United Mitochondrial Disease Foundation (UMDF) announced that its board of trustees chose Brian Harman as the organization’s next chief executive officer and president.   Harman will begin his new role with UMDF on July 9, 2018.  Harman succeeds Charles [...]

By | June 25th, 2018|Categories: Uncategorized|0 Comments

What Would Help or Hinder Patient Participation in Mitochondrial Disease Clinical Trials?

CHOP Researchers: Patient-Centric Perspective Offers Key Insights into Upcoming Treatment Studies Philadelphia, June 6, 2018 – As clinical trials gear up with the aim of attaining the first FDA-approved treatments for mitochondrial disease, a new study reports for the first time what patients and families say would motivate them for or against participating in such research trials. Based in [...]

By | June 6th, 2018|Categories: Uncategorized|0 Comments