To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
Patient and Family Support
Members of the UMDF are able to network with other families and individuals to talk about mitochondrial disorders. The UMDF keeps members updated with the latest treatment advances and information through a quarterly newsletter. UMDF members are able to find support on the local and regional level through various chapters, groups and ambassadors. Click here to connect with UMDF.
Since 1996, the UMDF has provided more than $11 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure. Click here to learn more about UMDF Research efforts.
Information and Communication
The UMDF maintains this website to provide the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. The UMDF also provides information about local fundraisers and educational programs. The UMDF advocates on the national level and empowers members to advocate on the local level regarding issues of medical funding and children’s health issues as well as social services for the medically fragile and disabled.
Many corporations match employee donations (or the tax deductible component of your membership) to our organization.
If you volunteer with us, your employer may also provide us with a grant as a way to recognize your ongoing support.