Learn More About the RDCRN

Learn More About NAMDC

 Join the RCDRN Patient Contact Registry NOW!

1. From the highlighted links below, click on the link that best describes your diagnosis.  If you are not yet diagnosed, scroll to the bottom of the list and choose
“Mitochondrial Disease – Not Classified”

2. After you have read and agreed to the Authorization, the Registry form will appear on your screen. This form asks you for information such as your (or your child’s) name,
address, birth date, place of birth, email address, or items relevant to your (or your child’s) disorders.

3.  At the bottom of the registry form, click “Complete Registration” to send your information to the RCDRN.  If you have any questions or comments about the RDCRN, send an email to RDNWebmaster@epi.usf.edu

 

 

Privacy
Once you have entered and submitted this information online, the data will be stored in a secure, computerized database. No personal identifying information (such as your name, address, telephone number) will be given to anyone without your expressed approval.