For more than 20 years, the United Mitochondrial Disease Foundation has been the largest non-governmental funder of research focused on the development of treatments and cures for mitochondrial disease. In that time, through the hard work and dedication of our patients, their families, and donors, UMDF has enabled nearly $12 million in scientific research that demonstrably advanced the knowledge and understanding of mitochondrial biology while also seeding follow-on funding in excess of $100 million.
In 2018, UMDF is aligning its research grant program to the Roadmap to a Cure and considering new funding mechanisms. As part of that strategy, we plan to first focus on Leigh Syndrome research as a model for additional disease-specific funding opportunities in the future. We expect that exploring this type of mitochondrial disease will not only benefit Leigh’s patients, but will also have an impact on the diagnosis, treatment and care of other mitochondrial diseases.
As we refine our approach UMDF looks forward to sharing with the patient and scientific community both on the UMDF website and through other communication channels further details regarding specific funding mechanisms.
We anticipate first awards being made before the end of 2018.