2012 Symposium: Capitol Hill Videos

Note: All transcripts are in a rough draft, unedited format at this time, but they should be helpful to those seeking written documents of the presentations. 


Sessions concerning Adults

2012 Symposium - ADULT - How Does Mitochondrial Disease Affect GI Motility?
Leonel Rodriguez M.D., M.S.
To read the transcript, click here.

2012 Symposium - ADULT - Planning for Increased Limitations
Martha M. Bernad, Sc.D., C.R.C., Susan C. Robertson, Ph.D., OTR/L FAOTA
To read the transcript, click here.

2012 Symposium - ADULT - Age Related Diseases and Mitochondrial Disease
Douglas Wallace, Ph.D.
To read the transcript, click here.

Sessions concerning Children

2012 Symposium - CHILD - Living with Mitochonrial Disease
Panel: Kristi Cole, RN/ASN, Nurse and Parent, Sharon Goldin, Parent, Jake Didinsky, Teen, Mary Beth Morris, Parent, and Devin Shuman, Young Adult
To read the transcript, click here.

2012 Symposium - CHILD - How Does Mitochondrial Disease Affect GI Motility?
Leonel Rodriguez M.D., M.S.
To read the transcript, click here.


2012 Symposium - CHILD - Ask the Mito Doc Panel
Gregg Enns, MB, ChB, Richard Kelley, M.D., Ph.D., and Fran Kendall, M.D.
To read the transcript, click here.

2012 Symposium - CHILD - IEP and Building a Team to Help your Child meet His/Her Potential
Laurel Smith MEd, LDC
To read the transcript, click here.

2012 Symposium - CHILD - What is Palliative Care and How Can it Help my Family Cope?
Elissa Miller, M.D.
The presentation is clipped on this video. Click here to download the PDF! 
To read the transcript, click here.

Transitioning Sessions concerning Teens and Young Adults

2012 Symposium - Transitioning Session - Educational/Vocational Issues
Lynelle Palencia, Employment and Transition Representative, Jessica Stehle, M.A., C.R.C, Vocational Rehabilitation Councelor
To read the transcript, click here.

2012 Symposium - Transitioning Session - Financial and Legal Issues
Kelly Thompson, Attorney at Law and James Ibach, MBA, CFP(TM), AEP, Special Needs Financial Planner
To read the transcript, click here.

2012 Symposium - Transitioning Session - Medical Care
Andrea Gropman, M.D., Karen Smith, M.D., M.Ed., and Anne Tuccillo, Parent
To read the transcript, click here.


Sessions for Everyone

2012 Symposium - Clinical Trials and EPI743
Greg Enns, MB, ChB, Ron Haller, M.D., Michio Hirano, M.D., Fernando Scaglia, M.D., and Peter Stacpoole, Ph.D., M.D.
To read the transcript, click here.

2012 Symposium - Integrating Adapted Physical Fitness into Everyday Life
Thomas Harlow, Certified Adapted Physical Educator, MACAPE
To read the transcript, click here.

2012 Symposium - Genetics and Next Generation Sequencing - What does it all mean to Mitochondrial Disease Patients and Families?
David Thorburn, Ph.D.
To read the transcript, click here.

2012 Symposium - The Mito Cocktail: One Size Doesn't Fit All
Mark Tarnopolsky, M.D., Ph.D., FRCP(C)
To read the transcript, click here.

2012 Symposium - Mitochondrial Disease - What Is It and What are the Potential Therapies Out There?
Sumit Parikh, M.D.
To read the transcript, click here.

2012 Symposium - Nutritional Considerations in Patients with Mitochondrial Disease
Lynne Wolfe, M.S., CRPN, BC
To read the transcript, click here.

2012 Symposium - Navigating the Medical World When You or Your Child have Mitochondrial Disease
(From Urgent Care in ER to Extended Hospital Stays, What are the Do's and Don'ts) Jodie Vento, MGS, CGC
To read the transcript, click here.

2012 Symposium - Pain Management for Adults and Children with Mitochondrial Disease: Different Options to Treating Pain
Angela A. Fletcher, PsyD, Pain and Behavioral Medicine, and Fran Kendall, M.D.
To read the transcript, click here.

Closing Session Summary of the Scientific/Clinical Meetings

2012 Symposium - Summary of the Scientific/Clinical Meetings - What does it all Mean for Patients?
Bruce Cohen, M.D., Amy Goldstein, M.D., Sumit Parikh, M.D. and Russell Saneto, D.O., Ph.D.
To read the transcript, click here.