Living with mitochondrial disease can be a difficult road. The United Mitochondrial Disease Foundation understand this and our staff has put together various resources to help make the journey a little easier.
- What is Mitochondrial Disease?- The United Mitochondrial Disease Foundation has compiled a listing of Frequently Asked Questions (FAQ) regarding mitochondrial disease and UMDF, click here to go to FAQ.
- Ask the Mito DocSM - Do you have a general question you would like to ask a mitochondrial expert? As a member of UMDF you can have this opportunity, click here to join UMDF online. You can also view previously asked questions by clicking here.
- Patient Toolkit- Includes resources to make your visits to doctors and the Emergency Department less stressful, click here to view these resources.
- Resources and Activities- UMDF has compiled a listing of resources and activities in your area, click here for our events and activities map.
- Audio tapes from recent symposium- Our symposia offer some of the most up- to-date information on mitochondrial disease, but many are unable to attend in person. We offer audio tapes and handouts from the sessions. Click here to download order forms from previous symposia.
- Can’t find what you are looking for? Contact the national office and a member of our staff would be happy to help you. Call our toll free number 1-888-317-UMDF(8633) or email info@umdf.org.
- Cleveland Clinic remote second opinion service - Cleveland Clinic offers patients a ‘remote’ second opinion service right from the comfort of your own home. Cleveland Clinic experts review your medical records and diagnostic tests and render an opinion that includes treatment options or alternatives and recommendations regarding future therapeutic considerations. Both Dr. Bruce Cohen and Dr. Sumit Parikh are listed as eConsultants. Patients or parents can obtain a formal opinion without making a trip to Cleveland. Click here for more details or to obtain a consult.
 CarePages.com is healthcare's largest social network - They provide the emotional support needed for healing and well-being. At CarePages.com, you can create your own personal CarePage - a free, private, personalized web page that allows you to share updates with family and friends, receive messages of encouragement and support, read stories and tips and meet others in similar situations. Click here to go to CarePages.
- Brave Kids - Brave Kids is a non-profit 501C3 organization that serves the needs of children with chronic and life-threatening illnesses. By creating a unique Internet community, Bravekids.org fills a significant void for seriously ill children and their families. It provides a comprehensive free directory of health care resources. Our site also provides free message boards for children and their parents. Click here to go to Brave Kids.
|
