The United Mitochondrial Disease Foundation is one of five charities to benefit from a Special Needs Support Night at Chili's restaurant in Alpharetta, Georgia.  Chili's will donate 10% of  the sales from patron's who tell their server that they are there to support the UMDF!  The UMDF's night is the second Tuesday of the month. 

To read an article in the Appen Newspapers, please click here. 

UMDF member Deidra Atchley and her son, Joseph, were featured in a recent issue of the Lee's Summit Journal.  Deidra along with the Kansas City Chapter are holding their sixth annual Mito What? Family Fun Run on May 30, 2009. 

To read the article on Joseph click here. 

To learn more about the Kansas City Chapter's sixth annual Mito What? Family Fun Run or to register to walk, click here.

For more information about  H1N1 Flu, visit the Centers For Disease Control Website by clicking here.

The CDC also has information for health and medical professionals here.

CNN has provided " Questions and Answers about the H1N1 Flu".  You view that here.

The UMDF will update this page as needed as an informational resource for those affected by mitochondrial disease and their families.

On April 16-17, 2009, the United Mitochondrial Disease Foundation held it's 12th annual Grant Reviewers meeting in Pittsburgh, PA.
Each year, the UMDF receives hundreds of  'Letters of Intent" from researchers interested in the grant program.  The UMDF's
Scientific and Medical Advisory Board reviews and ranks each.  Investigators providing Letters of Intent of greatest interest or scientific
value for projects in line with the UMDF's mission goals are invited to submit a formal proposal.  It was those proposals reviewed in April.   Grant Review Co-Chairmen, William Copeland, PhD, and Carmen Mannella, PhD, discuss the process in the video below.

Also, visit our media room for additional audio and video presentations. Click here.

UMDF members Norman and Donna Pulliam's daughter Caroline was featured in a news article in the Spartanburg Herald-Journal.  The Pulliam's along with their friends hold a weekend long event in honor of their daughter called "Caroline's on My Mind." 

Click here to read the article in the Spartanburg Herald-Journal
Click here to learn more about Caroline's on My Mind

New York Times - Brown Fat Identified as Heat-Yielding Cells in Humans

AlphaGalileo - Key Protein in Cellular Respiration Discovered

Join the UMDF for a night of fun, baseball and fireworks at PNC Park!

Middle Tennessee became the UMDF's newest chapter on March 2, 2009.
To visit the Middle Tennessee Chapter page, click here.

Researchers at NYU Langone Medical Center in New York City may have discovered a new targeted intervention for Barth Syndrome (BTHS).  The new study, entitled "Role of calcium-independent phospholipase A2 in the pathogenesis of Barth syndrome", was recently published in the Proceedings of the National Academy of Sciences.  The research establishes a casual role of cardiolipin deficiency in the pathogenesis of Barth syndrome and identified an important enzyme in cardiolipin degradation. 

Click here to listen to MITOCHONDRIAL NEWS and our interview with the lead investigator of the study, Mindong Ren, Ph.D  

The research was partially funded by a UMDF research grant, a grant from the Barth Syndrome Foundation and the National Institutes of Health (NIH)

To see or hear other UMDF Mitochondrial News Interviews or Video, Click here.

UMDF members Sean and Tracy Custer held the Hope. Energy. Life. Golf Outing in honor of their daughter Olivia Custer.  The event was held on Saturday, February 21, 2009 in Bluffton, SC.  Click here for a news article that ran in the Bluffton Today.