Countdown to 2009 - (PDF)
A timeline developed to help you advocate. It gives guidance on the type of communications you should be sending to elected officials and dates as to when such communications should occur. This timeline begins in June 2008 and ends June 2009. It is only a guide, so you can adapt it.
About UMDF - (PDF)
This document describes the UMDF mission and goals and can be downloaded for elected officials and media who need more information about the national organization.
Mitochondrial Disease Fact Sheet - (PDF)
This document describes mitochondrial disease, incidents and prevalence and links to other diseases. This is a document that can be sent to or left with elected officials, or given to the media.
Links to other diseases - (PDF)
Defects in mitochondrial function are at the core of many common diseases and conditions. This document provides the links these diseases. This is a document that can be sent to or left with elected officials, or given to the media.
Frequently Asked Questions - (PDF)
This document provides the answers to many of the questions asked about mitochondrial disease. This is a document that can be sent to or left with elected officials, or given to the media.
Talking Points - (PDF)
This document provides the message that we all must use when speaking to elected officials and to the media. Core messages are bolded. Below each core message are additional points that you may add.
Working with Elected Officials - (PDF)
Information about contacting and communicating with elected officials. If you do not know the name of your representative in the U.S. Congress or the U.S. Senate, please click here for help in getting that information.
Sample Letter to Elected Officials - (Word Document)
You can view a sample letter to an elected official, or download the information into a Word Document, so that you may copy and paste to create and personalize your own letter. Please include personal stories.
Working with the Media - (PDF)
Information on how to contact the media to promote stories and information happening in your state or community.
Writing a Letter to the Editor - (PDF)
Sample Letter to the Editor- (Word Document)
Tips on writing a letter to the editor of your local paper. You can also copy and paste a sample letter. Make the letter personalized with your information as well.
Writing an Op/Ed Piece - (PDF)
Sample Op/Ed Piece- (Word Document)
Tools to detail the creation of an Op/Ed piece for your local newspaper. You can also copy a sample op/ed piece to use after you've added your personalized information as well.
Sample Media Advisory - (PDF)
A sample of a media advisory to help you create media awareness is available. ALL RELEASES AND ADVISORIES MUST BE SUBMITTED TO THE UMDF NATIONAL COMMUNICATIONS OFFICE BEFORE THEY ARE SENT TO THE MEDIA.
Sample Press Release - (PDF)
For your use in structuring a media release. ALL RELEASES AND ADVISORIES MUST BE SUBMITTED TO THE UMDF NATIONAL COMMUNICATIONS OFFICE BEFORE THEY ARE SENT TO THE MEDIA.
Additional Resources - (PDF)
Links to other web sites that may be helpful.
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