In an interview with Scott Miller of CBS Sports.com, Rocco Baldelli, in talking about this web page said:
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| Hey Rocco, Nice to see you in the World Series. My name is Darren and my 10 year old daughter was diagnosed with Mito in January 08 and it has been a long unpleasant road.I just go to bed each and every night and hope for the best. Got to be strong and keep my head up.Now I see a man in the world series with Mito and it helps to see you out there and playing cause Kaitlin likes to do cheerleading and I just cant tell her no so she pretty much gets to do whatever cause I feel like one of these days she wont be able to do that kind of stuff. Me or my family hasnt ever heard of Mito till this year and my wife has been in the medical feild for along time so that tells you it doesnt get talked about much.I read alot on here bout all the people that has this and makes you wonder how it has been kept a secret for so long.Well I want to Wish You the best of Luck out there in the world series and every thing else.Good Luck the Timmons Family. |
I'm sorry that you have to be suffering mitochondrial disease in order to get the disease known by most of the US and even the world as they watch you play baseball, but all eyes are on you now. You are a celebrity struggling with a disease that is not well known by the world. They are going to see how you handle it and they are going to want to know more about what YOU have. Now we will begin to get more recognition about mitochondrial disease. However, as I too have mitochondrial disease, I struggle to get through my days. I pray for you as you continue to live through every day -- and make each day a normal one! Thank you for getting back into your chosen career and being an example for all of us!
Joy E. Krumdiack
Washington State Ambassador
for UMDF
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hi, Rocco,
We are baseball fans here! I just want to say thanks! for letting the world know you have mito. i have twins a boy and a girl both have mito My daughter has comnplex IV and my son has a undiagnosed mito. Not many people even know what mito is. with your telling the world now they know. I hope you have a good season and good luck to you and our family!! take care!
Kim Lawton
NY
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Hi Rocco,
I wanted to send you an email of encouragement and wish you the best of luck in the World Series, I know myself and all of my family and friends will definitely be rooting for you and the Tampa Bay Rays. Thank you for putting a face to something that many are so confused about, thank you for making me not feel ashamed of having this disease. I almost died last year because of mitochondrial disease and I was diagnosed at an older age (19), but when I got my diagnosis it explained almost every problem I have ever suffered in my life. I had no idea what this disease was when I was first diagnosed and had no idea what my future held for me, but now seeing your struggles and triumphs I know that I can do whatever I want to do, thank you for being my unsung hero, thank you for showing me that this disease does not define me and my life, thank you for showing me that there is hope. I want you to know how much of a hero you are to me and to wish you the best of luck with the world series and everything you do in life. Thank you for showing me that I have to power to change my nightmare to a dream.
Wishing you well and the rays victory!
Leslie and The Whitt family
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Hi Rocco,
My name is Bobby and I am 9 years old and have mitochondrial disease too. I think it is really cool that you play professional baseball. I play tackle football for my town. I know how hard it is to have to practice and play when you don’t feel good, but you have to keep trying really hard. Don’t give up! You have to work a lot harder than everyone else, but it is worth it. When I am on the field and everyone is cheering for me, I kind of forget I have mitochondrial disease. Now that I know there is someone like me who is a professional player, I think I could do that too someday. Do great in the World Series; I will keep cheering for you!!!!!!!
GO ROCCO!!!!!!!
Bobby Arnold
P.S. Don’t forget to give your mom and dad “thumbs up” when you’re on the field, so they know you are ok and won’t worry about you.
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Hi Rocco!
Good Luck in the World Series!! Know that there that there are parents of affected kids all over the
You are a hero to our kids, not because you can hit a ball, but because you are one of them. Because you are affected with mitochondrial disease and you haven’t given up. Because you have shown them how to live courageously with mitochondrial disease. Because, you have shown them that this disease does not have to define who they are. You are what they could be if they get to grow up.
Thank you for sharing your story. Your courage in doing so has had an impact on more people than you will ever realize! May God continue to bless you with strength, courage, and health!
Lisa Arnold
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thank you rocco
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Rocco – you are truly an inspiration and give hope to everyone who suffers with the effects of MM. I can relate, as I was diagnosed with MM (adult onset, with many of the exact same symptoms you experience) after nearly 4 years of searching for an answer. Thank you for being such a fine example - for never giving up on a dream, regardless of the challenges you may be facing. Though this devastating disease grips many people in different ways, a positive attitude clearly has an impact on the quality of life one can expect after a diagnosis of MM.
Go Rays!!
Kevin - Atlanta GA
Dear Rocco,
That was an incredible hit that you hit against John Lester on Sunday. My dad gave me the article on you that was published in the New York Times and The Dallas Morning News. He is on the Board of Directors for the UMDF. I hope to meet you someday. Congratulations on making the World Series. I am rooting for your team to win.
Kelsey W. from Texas
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My 6 year old grandaughter has mitochondrial disease complexes 1 & 3.
Rocco,
Thank you for your voyage into becoming the poster boy for Mito. You didn't choose it, but you gracefully took it on. Our son, Bryson is nine, has a rare mitochondrial disease and plays baseball. Our family is part of the Mitochondrial Research Guild out of Children's Hospital in Seattle, though we live in Idaho. Baseball (even Mariner's baseball) has been a comfort to us as we have watched our son struggle to hold on to life, or just struggle to run the bases. Probably no one else would cry when they hear "Take Me Out to the Ball Game," but it sustained us when we knew the game was our reprieve from the hospital (I don't care if I never go back). So know that your ordeal, courage and love for the game are shared by people dealing with mito all over the country--even Idaho. We're wishing you the best. Thanks again for taking on the publicity for mito.
The Potter family
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We have twin 10 year old sons, Christopher and Michael, with a mitochondrial disorder. Thank you for going public with your diagnosis and helping people to better understand the disease. For my boys, it has helped take the stigma away from it, knowing that you are a famous baseball player who openly talks about what you go through. Best of luck – we’ll be rooting for you!
The Links
Palm Beach Gardens, FL
Dear Rocco,
My name is Lori, I'm so sorry to hear about you diagnosis of Mitochondrial disease, I can sympathize with you, I get terrible pain all over sometimes it's so bad I can't sleep, or function, walking is even difficult,I was diagnosed in 2005 with mitocondrial disease comp It is scary, one time I was in the Ocean, on my way out when my legs tuned to rubber, and I couldn't walk, so I can imagine how scared you were, My first symptoms were big time Pain, and digestive problems, muscle weakness, even in my lungs, I get short of breath, doing the simplest of things
and I used to consider myself very athletic.I even played baseball.
So as you can see I know what you are and have gone through. The only benefit if there is one is that you are well known. You, are in a position with first hand knowledge of the disease, To bring awareness to this cruel hidden and unknown disease.If it were not for the likes of Michael J. Fox (Parkinson) and Lou Gehrig those diseases would probably not have received the recognition they should. It seems the only way to create awareness is if someone of stature has the disease and becomes the face of that disease. You would be such a great face and spokesman to help create awareness for Mitochondrial disease. Somehow we must get the word out It takes a famous face to raise the money for research..
I hope you take it all.
Sincerely,
Lori Jubinville
May God watch over you and keep you healthy. :-) Keep smiling.
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Dear Rocco; Thank you for coming forward about having Mitocondrial Disease I have a 4 year old daughter who has Mitocondrial Disease complex 3 and 4 as well as Retts Syndrome and she has a stuggle everyday of her life. I wish we in the United States could have some Federal funding to help find a cure for this awful disease. My daughter currently has 15 Doctors she will see on a regular basis for all her needs. Thank you again Rocco maybe between all of us we can the word out about this awful disease. Sincerly, Lisa Ferguson Westerlo New York
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We've been a Rays fan since day one. Original season ticket holder and haven't stopped believing. We lost a grandson to complications from a mitochondrial disorder nearly four years ago. It took months and months before a disorder of the mitochodria was the diagnosis for young Collin Parker. Unfortunately, at 10 months of age, he was unable to continue the fight. Since 2004, we have relied upon the UMDF to provide information to help us understand the debilitating nature of diseases of the mitochondria.
We have watched you since 2003, your advances on the field and the concern regarding your unidentified medical condition, the questions of diagnosis, etc. off the field. Stay strong, continue to persevere and never give up- on the diamond or daily in your fight!!
Onward to the World Series!!!!!!
Go Rays!!!!
The David Family
Tampa, FL
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Rocco,
Thank you for displaying the strength and determination publically to live “well” with
I have two sons 9 and 7, both with mitochondrial disease. Bryce is relatively high functioning but my youngest, Layke, is non-verbal and has huge cognitive challenges and a seizure disorder. The awesome news is that he started walking 2 ½ years ago and began playing baseball with the Miracle League last year! He loves it so much! You are an inspiration to us all. Keep winning and keep on being a winner – Show ‘em you can have a disease and not let it have you!!!!
Marie Reynolds
Life is a joy!
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Hello Rocco,
My 11 year old son and I are huge baseball fans, my son Lenny was diagnosed early in life with Mitochondrial Disease (Complex 2). Lenny is unfortunately in Children's Hospital in Boston currently having another surgery, however we did watch you play Monday night on TV - You had a GREAT Game (unfortunately for us Red Sox Fans).
We hope you enjoy playing at Fenway Park - it truly is an amazing ball park, so rich in tradition and history. Lenny and I try and get to Fenway at least once per year and he too recognizes the magic of Fenway. When we go we have to get there early to watch all the pre-game batting practices and other pre game happenings and than we can not leave until the last pitch is thrown (No Matter what).
You are an inspiration to us. Just as you appear to be doing Lenny too tries to live his life to the fullest.
We wish you the best of luck on and off the field!
THANK YOU!
Lenny Gratton and Dad
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Dear Rocco,
I have L.H.O.N. however that doesn't stop me. I am a huge Baseball fan. That was an incredible home run you hit yesterday. I am so glad that the United Mitochondrial Disease Foundation is finally getting some recognition, it is way overdue. I am rooting for you, so keep hitting those homers!! I really hope that your team makes it to the World Series.
Best Wishes,
Kelsey W. from
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Rocco,
I am the mother of a 13 year old boy who is about to have a muscle biopsy , and is looking at a
Rachel Wise
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Rocco,
We would like to wish you luck in the ALCS and beyond! Our two year old daughter has a
Proudly,
Chris, Alisa, & Morgan Rawski
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I witnessed your 3-run homer last night and learned that you had mito, as I do. What an inspiration! God Bless and Good Luck!
Lori Fore
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Dear Rocco,
I am a nine year old boy with
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WOW!!! Rocco hit a three run homer. You’re giving hope to the
The Slauter Family
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Dear Rocco,
May God bless you. Your family, fans, and your teammates love you and are praying for your well being. I pray that a cure will be found.
Love,
The Reinhart Families
Rocco,
You are an inspiration to all of us battling mitochondrial disease. Keep on keepin’on!!! You have made an amazing comeback – we are so proud of you. We’ll be watching the TAMPA BAY RAYS as they make it to the World Series!!
Pam Johnson,
Kansas City
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Rocco:
I just read an article in our local paper about your rare disease. It is not so rare. There are many people dealing with this on a daily basis. Especially children. I'm dealing with it now with my daughter who is 10 years old. You are sending a positive message to all here that you can still do things even when you feel you can't go on. Your positive outlook is wonderful.I love baseball and will cheer your team on. Good luck and go Rocco go.
Lisa Nerenhausen
mom to Leah
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Congratulations to Rocco and the Rays...
We are so proud of you for spreading the news about Mitochondrial Disease. We are looking forward to a Phillies Vs. Rays world series!!!
Laurel and Dave Smith (aka, Jamie's
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Rocco - you are truly an inspiration. Our son, Jack, has mitochondria but doesn't let that slow him down. He is playing his fifth season of baseball and today his team won the game of the season! Jack adores baseball! There are times when he wishes he could run faster but his team ALWAYS counts on him for the RBI...and he never lets them down! We will continue to ROOT FOR ROCCO! And besides, us Italians have to stick together...GO ROCCO!!! Bob, Susan, Gabby and Jack Milani
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We've been watching Rocco for his whole entire career and we are as happy as ever for Rocco to be playing again! And he fianally gets his chance in the postseason [hopefully the World Series]!
The Brantley’s
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We hear that you may be in the lineup for game 3 on Monday night!!! Way to go!! My son Jack who is 9 was diagnosed with a mitochondrial disorder last year and is inspired by your story. Jack is a soccer player and a determined young man on and off the field. Thanks for helping him, and others who face the challenges of mitochondrial disorders, see what determination (and exercise) can do!
We live in California now but are originally from Boston so its hard not to root for the Red Sox, but you can be sure that we will be rooting for you too - loud enough for you to hear us all the way from California when you take the field on Monday night!
GO ROCCO!!!
Stay well.
Jana, Jack and McKenna Stoudemire
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Rocco-
All the best to you in the playoffs... We wish you good health for a long time.
To him who is determined it remains only to act. Italian Proverb
God Speed-
Marie and The Three Wiseguys!
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We are Rays fans in the
You were a marvelous ball player before -- you're truly an inspiration to everyone now -- this team is very special -- so glad you're a part of it!
We're rooting for you from Section 124 -- as a person and as a player -- Big hugs to Rocco Baldelli!
Claire, Tom & Carter Brantley
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DEAR ROCCO ,
MY HUSBAND CHUCK AND I HAVE ALWAYS ROOTED FOR THE
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Dear Rocco,
My husband and I met you as a "Rookie" for the Devil Rays. We have always enjoyed watching you play. We were concerned about you for the past few years as one thing physical went wrong with your body after another. Thru all of your trials you were always upbeat and pleasant with what you were asked to do for the Rays.
Now you have a reason for your physical problems and yet you have come back to play for your same team, now THE RAYS. I hope you are having as much fun as we are watching you guys continue to WIN. GO RAYS AND ROCCO!
Colin and Marie Povey
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Congratulations and keep on going Rocco. Do you ever make appearances to encourage the younger children who have
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Hi Rocco….you have been my favorite Rays player since I have followed the team. I am an Italian from
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god's blessings on you, Rocco. to know what is possible physically is best exemplified in your spirit to "fight-despite." those of us in the far outfield now have someone who can put our disease (i also have
our warmest fond wishes to you,
cyndie & dan corey
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I'm rooting for you! I know a little 8 year old girl with Mitochondrial Disease.
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I'm normally a big Marlins fan, but now I'll be cheering for Rocco and the Rays!
Keep fighting!
Josie London
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Your strength in the face of adversity and willingness to fight on are
an inspiration to me and make me feel grateful for my own health and
that of my family in a more immediate way. You are an inspiration and
we're all proud of you!
Prayers, Love, good vibes and all to you,
Amanda
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Good Luck Rocco We are pulling for you.
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i wish you all the luck of the world, not only for your sportlife but
especially for your health and happiness.
helene degen
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Dear Rocco,
My name is Kaelei and I have mitochondrial disease too. I am ten years old. Thank you for sharing your story with us. You are brave. Play ball good and most of all have fun and be happy. I hope you win!
Love, Kaelei Kennedy
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Rocco,
As one that deals daily with this disease while working and raising a family, I salute you and your efforts to get back on the field. You are an inspiration to us that know what it truly means when “your muscles just don’t work”. Keep on working hard and doing what you love. Go D-Rays!
Dan S.
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And good health
Steve Daley
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I wish you the very best…and sincerely hope you and your teammates get to the World Series. And this is from a die-hard Yankee fan!
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Dear Rocco,
As a proud Rhode Islander and New York Yankee fan, I am rooting for you twice as hard (tee hee hee). Also, my nephew was a member of the
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Good luck and stay healthy.
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GO ROCCO!!!
Rosanne Haroian
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Rocco, you are a true inspiration for all people struggling with a debilitating illness. Thank you for your courage and spirit! Cheers to you! Jennifer
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Dear Rocco,
I'm an adult battling a rare form of mitochondrial
disorder (possibly kicked into gear by having contracted Lyme Disease a few years ago). I can't begin to tell you how much your inspiring story has touched my heart and given me renewed hope. I first heard about your health challenges while watching a broadcast of a
Rays-Orioles game the night you got hit a key hit causing the Rays to win the game. After the announcer mentioned that you were battling a mitochondrial disorder it really got my attention and I was totally awed to see you hanging in there and still playing....and playing well!
Thank you for going pubic with your health challenges. Your public persona has given those of us in the
challenges faced by ADULTS with mitochondrial disorders.
Your heart has always been visible in the way you've lived your public life and the awesome way you've played baseball, but now your courage, perservance, AND your heart are visible in an even more awe-inspiring
way. Thank you for giving us hope.
You are in my thoughts and prayers in hopes that you will be given the health, courage, and strength to continue to pursue your dreams.
You can bet we will be rooting for both YOU and the Rays.
Anita Brandon
Wrightsville PA
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Dear Rocco,
Thank you for bringing a little bit of sunshine to all of us dealing with
Donna
(
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I have a 19 year old granddaughter who has had this disease for years, in and out of the hospital with many fears, but so far with the help of God she has over come and is still smiling. God bless you and all who have this horrid disease and all who are taking part to find a cure.
Grandma Angie
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ROCCO GO RAYS….. WHAT AN INSPIRATION YOU ARE to those who are sick and suffering with Mitochondrial Disease
My family, friends and my thoughts and prayers are with you. Good Luck Hit Em Hard.
Cathy Anderson
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Dear Rocco,
I am Ben the 12 year old son of Matt and Cindy Cruz well when my mom said I usually get a pinch runner, that is not true I sometimes do. Also I am not the fastest runner but I am about average. I will be routing for you in the playoffs against the red sox, it will be a tuff game but if you play well I think you will win the series. So have a good game.
Go RAYS
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I’m a Red Sox fan, but GO ROCCO!!!
Adam Burns
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I will be following you and wishing for the best. My 17 year old son has
Marsha Smith
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I wish I'd have known before you eliminated the White Sox.
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Crush 'em Rocco!!!
We're rooting for you.
Ron Hahamy
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You are an inspiration to many and have done an important thing in bringing greater awareness of mitochondrial disease to the public.
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Have a great playoff run.
J.P. Szambelan
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That is wonderful that you are able to return to what you love.
Best of Luck,
Juju Bug
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GO ROCCO!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Lauren
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You make it real, Rocco. Go Rays!!!
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We are die-hard Red Sox fans, transplants from the
The McFetters family- Butch, Kristin, Kyle, Brendan and Zachary
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Wishing you continued strength to continue your fight with
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GO ROCCO!
Jen
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God Bless you Rocco as you as you lead the
ROCK THE HOUSE ROCCO!
Fred & Paula Durham
Keep up the hard work Rocco. I live in
Best Regards,
Sherri
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As a mother of a child with a
Thanks
J Holleran
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I am a proud Rhode Islander and a proud Red Sox fan – but I am rooting for Rocco Baldelli.
He is an inspiration to all those suffering from mitochondrial disease.
I wish him continued success and hope. Stay healthy Rocco and keep fighting!!!!!
Dawn B.
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There is so much out there that people are not aware of. Gods Blessings for you for contiuned health and success.
Way to go Rocco!!!!!
Jennifer S. Porter
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I just want to say you go Rocco. I am a member of the UMDF for various reasons but the most important one was my son Tylor who passed away 6 years ago at 6 1/2 years old from his
Rocco, you're an inspiration and I want the Tampa Bay Rays to win win win!!
Sincerely,
Alisen Gross
(mom to her
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Rocco,
My son is a 18 year old sports geek who just happens to have mild mitochondrial myopathy. He would get frustrated explaining his disease to people so he would just call his disease cerebral palsy because people knew what that was.
Now, you have given this mystery disease a face and name recognition. He's proud to say he has mitochondrial myopathy just like Rocco of the Rays!
Rock on Rocco! For John!
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Rocco:
I am the father of two boys, ages 17 and 12, who both suffer from Mitochondrial disease. My youngest, Ben, is an avid baseball fan and player, so we will be following your progress throughout the playoffs with great interest.
My wife and I, along with a few other families in the area has started a fund raising effort for the benefit of Dr. Saneto and Children’s Hospital here in
Even though we are entrenched Mariner fans, we will be pulling for you and the Rays this year. You did not choose this
Go Rays!
Best Wishes, The Cruz Family.
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Will be rooting for you while we watch the games. Our 2 year old granddaughter has a mitochondrial disorder.
McKenna’s grandparents
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I vote for Rocco
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Thanks
Jo Bozek
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Dear Mr. Baldelli,
We want you to know that we think it is awesome that despite the diagnosis of
Though we are 1/3 Red Sox fans, 1/3 White Sox and 1/3 Mariners fans (well we live in
Sean our 14 year old son played Little League for 2 years and became a rabid baseball fan and statistician. Sports are hard for him as well.
Our daughter (11.5 years) is particularly hit with the fatigue, muscle cramping and weakness. Not great for a ball player or a ballerina such as herself. Her dream is to dance in pointe shoes one day – to have the strength and endurance to achieve such a goal. Like yourself she must balance out her energy stores and make choices on how to spend those energy allotments. Your story has given her encouragement that with taking care of herself and balancing her life there is a future for her in dance.
Thank you for sharing your story – thank you for being so many kids hero that deal with this disease.
But most of all ------- Go
All our best,
The Denson Family
Kara (11) Sean (14) Alan and Marilyn
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Never give up, never stop fighting.
Joe Wise
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Hi There
Grace can throw a ball about 5 feet and she can catch with the help of a Velcro mitt. We will be cheering you on all the way.Good Luck Rocco.
Shawn, Dori and Grace (Grace - age 5 has
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AS A RED SOX FAN, I WISH YOU PERSONALLY A GOOD SERIES, BUT I HAVE TO ROOT FOR MY TEAM.
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Good going!
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With two grandsons stricken with this, we know what you, Rocco, are going through! We admire your courage and perservance!! You set a great example for others!
God bless and strengthen you, and give you grace, courage and wisdom!!!
----Grandparents in
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What a great story for the ALCS. Yea Rocco! You are truly an inspiration.
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Yay Rocco we are so proud of you! You can do it!
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