The UMDF has made available audio tapings from past symposiums. The list below are tapes of sessions which may be of particular interest to adult patients. Many of these titles are available for listening through your local UMDF chapter or support group, while others can be ordered through the UMDF Library. Some sessions are available as part of the FREE Hope Membership with the UMDF. Click here to join the UMDF.
- Neurological Manifestations of Mitochondrial Disease
Amy Goldstein, MD (Audio CD, Atlanta 2006)
- Planning for increased limitations
Deborah Means, CRC, CCM, CDMS, and CLCP
(Audio CD, Atlanta 2006)
- Keeping the Marriage Healthy (when your spouse is not),
Cynthia Stone, MA, AMTF and Patricia Johnston, RN,
QCSW, BCD (Audio CD, Atlanta 2006)
- Ask the Mito Doc Panel - Adult (Indianapolis 2008)
- To exercise or not to exercise? ... that is the question
Tanja Taivassalo, PhD (Indianapolis 2008)
- Gastrointestinal Issues & Mitochondrial Disease in Adults
Amy Goldstein, MD (Indianapolis 2008)
- Latest Concepts in Mitochondrial Disease Part II
John Shoffner, MD (Indianapolis 2008)
The following audio CD may be of interest to those who wish to know more about the difference between palliative care, respite care and hospice relating to both children and adult situations.
- Care Panel - Lucy Kusick - FOCUS, Nina Leonard, RN, MSN, and Denise Greenberg, LCSW, (Audio CD, Atlanta 2006)
There are many benefits to learning how to express yourself in writing and as an adult patient dealing with a complicated and little understood medical condition, you may appreciate the benefits of learning some of these simple techniques.
- Writing and Healing, Marybeth Fischer (Audio CD, Atlanta 2006)
Reading materials
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