PLEASE READ THIS BEFORE USING THE GUIDE! 

We are excited to provide you with this first edition of the UMDF Mitochondrial Resource Guide Online! It represents many hours of searching for the best information and resources to help you care for yourself and/or your family member affected by a mitochondrial disease.

Please understand that this resource guide is merely to be used as a tool. It is not meant to be a substitute for professional advice and services rendered by qualified doctors, allied medical personnel, and other professional and legal services. The responsibility for any use of this information, or for proper medical treatment, rests with you and your physician.

The inclusion of any professionals, services, products, or organizations in this resource guide does not imply endorsement by the UMDF. If you determine that one of these resources is unsatisfactory, we would appreciate hearing from you. In addition, if you locate other valuable resources, either locally or nationally, please let us know for possible inclusion.  Click here to submit your resources online.

 Never forget that the best resource we have is our ability to empower ourselves and others to go far beyond that which we thought was possible! To give hope not hopelessness, to turn tragedy into tribute and tribute into triumph!

General Resources – National 

Diet & Nutrition Resources 

Adaptive Equipment & Equipment Care 

Adaptive Vacations, Camps & Sports, & Travel Help

 Medication Information 

Financial Help for Supplements

Specialty Resources 

Assorted Sample Forms
Family History,  Medication & Supplement Log, Daily Medication Administration Log, Side Effects,  Hospitalizations & Surgeries, Personal Information & Daily Schedule Forms for Temporary Care Providers,  ER Form - courtesy of American College of Emergency Physicians & American Academy of Pediatrics