Charles A. Mohan, Jr., CEO, Executive Director, UMDF

Mr. Mohan is the founder of the United Mitochondrial Disease Foundation.   The UMDF initially began in the basement of Mr. Mohan’s home in 1996 and has grown to a national operation providing Hope, Energy and Life to the thousands of people affected by mitochondrial disease.   Mr. Mohan served as Chairman of the Board of Trustees and has chaired both the executive committees and human resource committee. In July of 2006, Mr. Mohan was hired as the UMDF’s Chief Executive Officer where he remains the driving force behind the foundation, helping many families cope with the crisis of mitochondrial disease. Mr. Mohan owns a restaurant in Pittsburgh and has been in the restaurant business since 1963. He also taught at Plum High School from 1972-1979 and has served as a councilman for his local municipality. Chuck and his wife, Adrienne, lost their 15-year-old daughter, Gina, to mitochondrial disease in 1995.

Among the topics to be discussed by Mr. Mohan:

  • Patient Advocacy
  • UMDF Strategic Goals
  • UMDF Research
  • NIH and Mitochondrial Disease Research

"Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10."

The United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201 | Pittsburgh, PA  15239
Toll-Free: 888-317-8633 | F: 412-793-6477 |

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders
and to provide support to affected individuals and families.