(We hope to provide more details on each session on this page soon)
What to Expect
Patients and families are given many opportunities to network with other families as well as with some of the top mitochondrial specialists from around the world. The two day patient/family program offers two tracks to meet a variety of needs – affected adults, parents, caregivers, teens, and an opening session targeted for all attendees to prep them for the entire conference.
(Dress during the symposium sessions is casual; you’ll be sitting a lot, so wear something comfortable! You may want to bring a light sweater or sweatshirt, as all rooms will be air conditioned. For the banquet on Friday night, suggested dress is business casual.)
The Doctor is In
An all-time favorite with past symposium attendees, The Doctor is In offers patients and families the opportunity to meet with some of the top specialists in mitochondrial medicine one-on-one. Hours of operation and sign-ups are provided at registration and posted in the networking room. (Please note: this program does not establish a doctor-patient relationship. It is for information purposes only.)
Ask the Mito Doc Panels
Another all time favorite session of our attendees is the Ask the Mito Doc panel. We offer two panels -- one dedicated to affected adults and the other for parents/caregivers of affected children. The panels consist of mitochondrial specialists who have experience with adults and/or pediatric mitochondrial patients. Questions are submitted ahead of time and some are taken from the floor depending on time.
Each year, a networking room is open to all patient/family attendees and a message board is provided for folks to connect. Organizers have scheduled sessions in the Networking Room from time to time and those sessions will be noted in the registration brochure. Attendees are also seated by geographic region during the Friday lunch to help people connect with one another – it is not mandatory but most attendees take advantage of this opportunity!
Value of the UMDF Symposium – Bringing Patients/Families to the Bench Researcher
"In my opinion, this conference is very special because scientists with and without specific medical background get together and can meet with patients and their families who are, unfortunately, affected by a disease that we try to investigate. This 'bench to bed' strategy creates an atmosphere that is very challenging and motivating." ~ Suzanne Arnold, PhD, Aachen, Germany
During the Friday Night Banquet, the UMDF will celebrate our accomplishments and recognize the abstract award winners, research grant recipients, and announce the winners of various volunteer awards -- including, but not limited to, the LEAP (Living, Encouraging, Achieving and Persisting), the Heartstrings Award, and our newest addition, the Energy Award. Please take time to check out the awards and their criteria -- and nominate someone TODAY!
The deadline for this year's award nominations is April 15th!