Friday Family Session Schedule
| Friday, June 18 |
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| 7:00 a.m. |
Registration and Continental Breakfast |
|
|
| 8:00 a.m. |
Welcome -- Managing your Symposium Experience
Dan Wright, Chuck Mohan and Kara Strittmatter |
|
|
| 8:15 a.m. |
Clinical Trials in Mitochondrial Disease: Bringing Consensus to Treatment Confusion
Gerard Vockley, MD, PhD
Current Open Trials -- Speakers to be announced. |
|
|
| 8:15 a.m. |
AACT and Adult Gathering |
|
|
| 9:30 a.m. |
Break |
|
|
| 10:00 a.m. |
Latest Concepts in Mitochondrial Disease
Gerard Vockley, MD, PhD |
|
|
| 10:00 a.m. |
CHILD IHP, 504 Plan and IEP - What's the Difference?
Donna Noble |
|
|
| 11:15 a.m. |
CHILD Palliative Care
Sarah Friebert, MD |
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|
| 11:15 a.m. |
ADULT Pain Management in Adults with Mitochondrial Disease
Steve Lobel, MD |
|
|
| 12:30 p.m. |
LUNCH |
|
|
| 2:00-4:30 |
Special Autism Ask the Mito Doc Panel
Panel: Bruce Cohen, MD; Richard Haas, MB, BChir; Sarah Spence, MD, PhD;
Roberto Tuchman, MD, FAAN, FAAP; Pauline Filipek, MD |
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|
| 2:00 p.m. |
ADULT Ask the Mito Doc Panel
Panel:TBA |
|
|
| 2:00 p.m. |
CHILD GI Issues and Dysmotility
Richard Boles, MD |
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|
| 2:00 p.m. |
TEENS Teen Talk with Amy Goldstein, MD and Russell Saneto, DO, PhD (teens only) |
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|
| 3:00 p.m. |
ADULT SS Disability Process and Financial Issues
Beate Pohlig, Esq. |
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|
| 3:00 p.m. |
Providing Nutrition Support: From Oral to Enteral And IV
Deborah Pfister, MS, RD, CNSD |
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|
| 3:00 p.m. |
TEENS Exercise and Nutrition (parents welcome)
Mark Tarnopolsky, MD, PhD, FRCP; Joe Wise |
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|
| 4:00 p.m. |
Caretaker Workshop
Lynne A. Wolfe, MS, CRNP, BC; Larry Lynch, LCSW |
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|
| 4:00 p.m. |
Fundraising to Support the UMDF Mission
UMDF Staff |
|
|
| 4:00 p.m. |
TEENS Informal Social Gathering (teens only) |
|
|
| 6:00 p.m. |
Cash Bar Reception for Scientific and Family Attendees |
|
|
| 7:00 p.m. |
Banquet Celebration -- Awards Ceremony and Entertainment |
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