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Awareness Week

Mitochondrial Disease Awareness Week is celebrated globally to educate and increase awareness about mitochondrial disease. It takes place every year during the third week of September. During this week, affected individuals, their families, friends, co-workers and fellow students join together to sponsor a variety of events to promote outreach and education about mitochondrial disease and the broader impact of mitochondrial dysfunction on human health. This year,  Mitochondrial Disease Awareness Week will be held September 18-24, 2016

We have ideas for you that cover community education,
telling your story to the media,  Social Media,
getting Jack on the radioadvocacy, and fundraising

Learn about and join  UMDF's 7 Days of Mito Awareness
Activities here.
  If you join in on the fun, please post your pictures
and experiences on the UMDF Facebook page, Twitter and 
Instagram using  #mitoenergy16 !

 Tell your story in your community.

Speak to community groups and organizations.
An easy way for you to spread awareness is to schedule a speaking engagement before a community organization. You will have the opportunity to tell your story, educate the audience about mitochondrial disease and dysfunction, and share with them the progress that UMDF has made.

Set up an information booth in a mall, school, health fair or other community event.
  See if you can get permission to set up a display that has information about mitochondrial disease and dysfunction. Use the opportunity to talk about your personal connection to the disease and how people can help the UMDF provide the ongoing research that accelerates us down the path towards a cure
If this is something of interest to you, contact the UMDF at 888-317-8633 for tools and information.

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Tell your story to the media.

Raise awareness by reaching out to your local media. Ask them to do a story on mitochondrial disease and dysfunction. 

Awareness in the media comes in many forms.  It could be a story on your local television newscast.  Or, a print reporter may want to do a story on you or your family.  If you are interested in spreading awareness through the media, you need to start working on that now.  Below are some tools to help you get started.

Working with the Media- (PDF)
Information on how to contact the media to promote stories and information happening in your community

Communicating our Message (PDF) Information to prepare you to talk about mitochondrial disease and about the UMDF .

Writing a Letter to the Editor- (PDF)

Sample Letter to the Editor- (Word Document)
Tips on writing a letter to the editor of your local paper. You can also copy and paste a sample letter. Make the letter personalized with your information as well.

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Tell your story on Social Media.

From September 18-24th, change your Facebook cover and profile picture to these pictures provided by UMDF.   Let see how many people we can get to do this throughout the week
(right click the pictures and save to your computer to upload to social media).  Click here to get the facebook cover photo.  Click here to get a profile picture.

UMDF will be posting heavily throughout awareness week. Please "like" and "share" our posts with your friends.

Ask the question "How much do you know about mitochondrial disease? Learn more at"  Let us see how many hits our website gets during awareness week.

MAKE SURE TO USE #mitoenergy16 in your posts so we can see them and share them with everyone!

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Getting Jack on the Radio

Our friend, Jack Black, has produced two Awareness Week radio Public Service Announcements for mitochondrial disease.  One commercial is :30 seconds the other is :15 seconds.  

Can you get them to air on your favorite local radio station FREE?  

If your local station agrees to air the commericals, have them call the UMDF at 888-317-8633 or email and we will make the arrangements to have have them air for awareness week.  You can click on the links to hear the commercials below:

Jack Black :30 Public Service Announcement
Jack Black :15 Public Service Announcement

Help fundraise towards a cure!

Conduct a Coins for a Cure Campaign
Place coin collection containers in your school, church or local business for a designated period of time. No amount is too small to propel us down the path towards a cure. 

Conduct a Light Bulb Campaign
The UMDF will provide you with light bulb paper cutouts that can be sold for a dollar at local businesses and placed on a designated wall or window to raise awareness.  Contact our Special Event Department by email at or by phone at 888-317-8633 if you would like to hold an Awareness Week "Light Bulb" campaign or "Coins for a Cure" campaign.  

Participate in an Energy for Life Walkathon Near You.
To see the nearest EFL Walk, visit


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