Mitochondrial Medicine Regional – Birmingham, AL
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Regional Mitochondrial Medicine 2017: Birmingham, AL
Join us for an exciting collaborative effort:
Foundation for Mitochondrial Medicine
The United Mitochondrial Disease Foundation
University of Alabama Birmingham
Clinical/Medical Sessions: Friday, April 7, 2017
Friday Location –
Grand Bohemian Hotel
2655 Lane Park Road
Birmingham, AL 35223
Patient/Family Sessions Date: Saturday, April 8, 2017
Saturday Location –
Birmingham Botanical Gardens
2612 Lane Park Road
Birmingham, AL 35223
About the 2017 Mitochondrial Medicine Southeast Regional Symposium
Understanding Mitochondrial Disease and Mitochondrial Dysfunction: Opportunities and Impacts in the Clinic and in the Laboratory
The United Mitochondrial Disease Foundation (UMDF) is proud to join forces with the Foundation for Mitochondrial Medicine (FMM) to bring this exciting educational opportunity to the Southeast Region. Both organizations are dedicated to providing quality education about mitochondrial disease to medical and patient communities and supporting research advancements to find better treatments and cures for mitochondrial disease.
The UMDF hosts an international symposium in June each year and currently brings education to clinicians and patients throughout the year with its Grand Rounds program and regional symposia. FMM, through its Hope Flies Health Series and Webinars, is dedicated to creating awareness for mitochondrial disease and fueling connections with familiar disease organizations. This year’s Southeast Regional Symposium is a prime example of fueling connections and we are looking forward to showcasing this collaborative effort in Birmingham, Alabama this coming April!
The symposium program will focus on mitochondrial disease and mitochondrial dysfunction, which is at the root of diseases and conditions that affect the young and old in ways that can range from subtle to devastating, and is even responsible for the aging process itself. The program will offer a full day CME activity on Friday and a half day of sessions for patients/families on the following Saturday. Both groups will come together for a Friday night reception to encourage networking and exchange of information – more details to come.
A feature component of the 2017 Southeast Regional program will include a glance at cutting-edge research developments in bioenergetics, coming out of the University of Alabama at Birmingham’s Mitochondrial Medicine Laboratory, in conjunction with Seahorse Bioscience.
Clinical Session Schedule – Friday, April 7, 2017
|7:30 a.m.-8:00 a.m.||Continental Breakfast and Registration Sign-in|
|8:00 a.m-8:30 a.m.||Welcome and Introductions
Speakers: Laura Stanley, FMM; Philip Yeske, PhD, UMDF ; Bruce H. Cohen, MD; Victor Darley-Usmar, PhD and Leon Dure, MD
|8:30 a.m.-9:30 a.m.||Mitochondrial Disease Primer
Speaker: Amel Karaa, MD
|9:30 a.m.-10:30 a.m.||Screening and Evaluation of Mitochondrial Disorders
Speaker: Michio Hirano, MD
|10:30 a.m.-11:00 a.m.||Break|
|11:00 a.m. – 12:00 p.m.||Potential Treatments and Therapies
Speaker: Bruce Cohen, MD
|12:00 p.m.||Lunch (Clinical Trials and Pharma Advancements – and Roadmap to a Cure Updates) (Non CME)
Moderators: Philip Yeske, PhD, UMDF Science and Alliance Officer; Bruce Cohen, MD, UMDF Board of Trustees; Stealth Biotherapeutics; Reata Pharma; Anavex, others TBD
|1:30 p.m. – 2:15 p.m.||Bioenergetics and Mitochondrial Medicine – Aglient Technologies/Seahorse (Non CME)
Speakers: Victor Darley-Usmar, PhD/Leon Dure, MD; David Ferrick, Agilent Technologies
|2:15 p.m. – 3:00 p.m.||DOD Funding for Study of Origins of Leigh’s Disease
Speaker: Shilpa Iyer, PhD
|3:15 p.m. – 4:45 p.m.||Mitochondria and Related Diseases: Alzheimer’s, ALS, Parkinson’s, Autism, and Cancer
Speakers: Diana Shineman, PhD; Alex Sherman, PhD; Matt Goldberg, PhD; Robin Morris, PhD; and Keshav Singh, PhD
|4:45 p.m. – 5:00 p.m.||Closing Remarks|
|5:00 p.m. – 6:00 p.m.||Reception|
|6:00 p.m.||Keynote Address: Human Energy and Performance – Transforming the Way We Work and Live
Speaker: Andrew Deutscher, The Energy Project www.thenenergyproject.com.
Family/Patient Session Schedule – Saturday, April 8, 2017
|9:30 a.m.-10:00 a.m.||Continental Breakfast and Registration Sign-in|
|10:00 a.m-10:30 a.m.||Welcome and Introductions
Speaker: Victor Darley-Usmar, PhD, Leon Dure, MD, and Philip Yeske, PhD
|10:30 a.m.-11:30 a.m.||Mitochondrial Disease: What is It and What to Expect?
Speaker: Amel Karaa, MD
|11:30 a.m.-12:30 p.m.||Hope on the Horizon: Until there is medicine…Nutrition, Physical Therapy, Clinical Trials
Current Therapies in the Treatment of Mitochondrial Diseases
Speaker: Bruce Cohen, MD
|12:30 p.m.-2:00 p.m.||Box Lunch with Question and Answers with speakers and local clinic leadership
Moderators: Philip Yeske, PhD and Laura Stanley
|2:00 p.m. – 3:00 p.m.||UMDF and FMM Updates/Call to Action
• Laura Stanley, FMM Executive Director
• Philip Yeske, PhD, UMDF Science & Alliance Officer
• Shilpa Iyer, PhD, Impact of Patient Advocacy in Securing Funding for Mitochondrial Disease
Support & Exhibit
Here are some of the reasons you can’t miss this support and exhibiting opportunity!
- The exhibit location promotes one-on-one interaction among attendees and exhibitors — your company can have the attendees’ undivided attention.
- Attendees are decision-makers and influencers for the products and services utilized by their facilities and in their practices.
- Family attendees pose a valuable resource for many companies since they, too, are decision-makers and influencers.
- Excellent networking opportunities during all breaks and lunch.
Space assignments are made on a first come, first served basis and space is limited.
To reserve space and to get pricing information, please contact:
United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
2017 Course Description
2017 Course Description
The United Mitochondrial Disease Foundation, Foundation for Mitochondrial Medicine, and Children’s Hospital Medical Center of Akron (CHMCA) have joined efforts to sponsor and organize a CME-accredited regional symposium. Mitochondrial diseases are more common than previously recognized and mitochondrial pathophysiology is now a recognized part of many disease processes, including heart disease, cancer, AIDS and diabetes. There have been significant advances in the molecular genetics, proteomics, epidemiology and clinical aspects of mitochondrial pathophysiology. This conference is directed toward the clinician interested in all aspects of mitochondrial medicine. The content of this educational program was determined by rigorous assessment of educational needs and includes surveys, program feedback, expert faculty assessment, literature review, medical practice, and new medical knowledge. The format will include didactic lectures from invited experts. There will be ample time for professional discussion both in and out of the meeting room throughout the meeting. This is a one day meeting aimed at those with clinical interests.
Neurologists, Geneticists, Researchers/Scientists, Pediatrics, Internal Medicine, Nephrologists, Cardiologists, Endocrinologists, Genetic Counselors, Advanced Practice Nurses, Physicians Assistants, RNs, Occupational Therapy, Physical Therapy and Speech-Language Pathology, Nutritional Therapy, and Residents/Fellows/Students.
At the end of the program, attendees will have an in-depth understanding of the following areas:
- To explain the basic science of mitochondrial function and how dysfunction can lead to mitochondrial disease.
- To illustrate the symptoms and recognize the “red-flag” symptoms of mitochondrial disease.
- Demonstrate how to begin a mitochondrial evaluations.
- Explain the issue of certainty of diagnosis.
- Introduce the concepts of primary and secondary mitochondrial disorders.
- To summarize the goals of therapy and to present the current treatments available based on the most recent studies presented in the peer-reviewed medical literature.
- To be able to explain the available diagnostic testing, based on mitochondrial function, and to review new and expanding opportunities including next gen sequencing.
- As there are no FDA-approved medications or supplements used to treat mitochondrial disease, to identify the current therapeutic trials and preliminary data from these trials.
- Recognize the link between mitochondrial function and dysfunction to common disorders such as diabetes, Autism, Alzheimer disease, Parkinson disease and cancer, as well as the process of aging.
The Children’s Hospital Medical Center of Akron designates this live activity for a maximum of 5.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Ohio State Medical Association (OSMA) through the joint providership of Children’s Hospital Medical Center of Akron, The United Mitochondrial Disease Foundation, and the Foundation for Mitochondrial Medicine. The Children’s Hospital Medical Center of Akron is accredited by the OSMA to provide continuing medical education for physicians.
SPEAKERS & DISCLOSURES
The potential for a conflict of interest may be considered to exist if a faculty member has any relevant interest or other relationship with the manufacturer of any commercial product discussed in her/his presentation.
As required by the Accreditation Council for Continuing Medical Education (ACCME), each speaker is required to complete a Speaker Disclosure Form which outlines any relationship the speaker has with any commercial company whose products he/she will be discussing. The prospective audience must be made aware of the affiliation/financial interest by an acknowledgment in the program or syllabus or in the faculty listing.
The intent of this policy is not to prevent a speaker from making a presentation. It is intended only that any potential conflict of interest should be identified openly so that the listeners may form their own judgments about the presentation with the full disclosure of the facts.
The following presenter (or planning committee member) has a financial arrangement or affiliation with an organization or company:
Bruce Cohen, MD – Grant/Research Support: BioElectron, Reata, Stealth Biotherapeutics, Horizon; Consultant:: Stealth Biotherapeutics,
Victor Darley-Usmar, PhD – Grant/Research Support: Agilent; Consultant: Agilent
Michio Hirano, MD – Consultant: Meves Pharmaceuticals
Amel Karaa, MD – Grant/Research Support: Reata Pharmaceuticals, Stealth Biotherapeutics; Consultant: MitoBridge,
Alex Sherman, PhD – Grant/Research Support: ALS Association, ALS Finding a Cure Foundation, Muscular Dystrophy Association, Columbia University, Target ALS, NIH/NINDS
All other speakers (or planning committee members) have returned their disclosure forms, indicating that they have no relevant financial interest in any pharmaceutical or medical device company and do not intend to discuss any off-label uses of medications or medical devices in their presentations.
Leon Dure, MD Matt Goldberg, MD Shilpa Iyer, PhD Diana Shineman, PhD
Kara Strittmatter, MA, CMM Margaret Moore Keshav Singh, PhD Laura Stanley Philip Yeske, PhD
2017 Regional Symposium Planning Committee
- Bruce H. Cohen, MD, Course Chair, Akron Children’s Hospital, Akron, OH
- Leon S. Dure, MD, Course Co-Chair, Children’s Hospital of Alabama, Birmingham, AL
- Victor Darley-Usmar, PhD, University of Alabama Birmingham School of Medicine, Birmingham, AL
- Matthew S. Goldberg, PhD, University of Alabama Birmingham School of Medicine, Birmingham, AL
- Michio Hirano, MD, Columbia University, New York, NY
- Shilpa Iyer, PhD, University of Arkansas, Fayetteville, AR
- Amel Karaa, MD, Massachusetts General Hospital, Boston, MA
- Robin Morris, PhD, Georgia State University, Neuropsychology, Atlanta, GA
- Alex Sherman, PhD, Neurological Clinical Research Institute, Harvard Medical School, Boston, MA
- Diana Shineman, PhD, Alzheimer’s Drug Discovery Foundation
- Keshav Singh, PhD, University of Alabama at Birmingham, AL
- Laura Stanley, Executive Director, Foundation for Mitochondrial Medicine, Atlanta, GA
- Kara Strittmatter, CMM, MA, United Mitochondrial Disease Foundation, Pittsburgh, PA
- Philip Yeske, PhD, UMDF Science and Alliance Officer, Pittsburgh, PA
For more information on continuing education (CME), please email firstname.lastname@example.org or call 888-317-UMDF.
Grand Bohemian Hotel Mountain Brook
2655 Lane Park Rd
Birmingham, AL 35223
For those traveling in for the meeting and would like to stay at the Bohemian, the UMDF/FMM has a small block of rooms with a group rate of $239 per night (taxes not included). Please Click HERE!
Other options at a lower rate include the following:
Embassy Suites by Hilton Birmingham
Address: 2300 Woodcrest Pl, Birmingham, AL 35209
Phone: (205) 879-7400
Hampton Inn Birmingham/Mountain Brook
Address: 2731 US-280, Birmingham, AL 35223
Phone: (205) 870-7822