Patients, Caregivers, Clinicians, Researchers, Industry and Fellow Mito Groups: Take our Annual Strategic Plan Survey Now

ENERGIZE THE FIGHT.

Energy for Life

Mito University

Find Clinical Trials

mitoSHARE Patient Registry

No-Cost Genetic Testing

Meet Paxton.
Give the Gift of Energy
This holiday season, your gift to UMDF can help ensure the next family doesn’t face mitochondrial disease without the support and care they need.
Read Paxton’s Story →
Paxton smiling

A new memoir · Coming soon

The Donkey and the Cart

How a Father’s Grief Became a Medical Movement

By Charles A. “Chuck” Mohan Jr., Founder & Chairman Emeritus of UMDF

Pre-Order Now About the Book

50% of all book proceeds support UMDF mission servives.

Book cover of The Donkey and the Cart: a donkey pulls a cart up a winding green mountain road toward a red flag at the summit.

Our Mito Champions

Meet Gavin.

Meet Gavin.

Mito Champion

Meet Jeremiah.

Meet Jeremiah.

Mito Champion

Meet Hayley.

Meet Hayley.

Mito Champion

Meet Jagger.

Meet Jagger.

Mito Champion

Need to Connect with Us?

Call the Support Line: (888) 900-6486

Find a Doctor

FIND A MITO DOC →

UMDF maintains a list of 200+ doctors treating and researching mitochondrial disease.

Ways to Give

WE CAN’T DO IT ALONE  →

Your involvement is critical to find a cure for mitochondrial disease.

Find an Event

VIEW UMDF EVENTS →

Find a virtual support meeting or UMDF fundraiser in your hometown.

Take Action

BE AN ADVOCATE  →

Use your voice to impact legislation affecting the mitochondrial community at the federal and state level.

Find Support

UMDF IS HERE TO HELP →

Get helpful resources, educational info and caring support.

Our Impact

READ IMPACT REPORT →

The work done through UMDF is making a global impact.

UMDF Connect

Read More

Ask the Mito Doc – October 2026

Ask the Mito Doc - October 2026: Understanding Access to Therapies  Ask the Mito Doc - October 2026: Understanding Access to Therapies - Compassionate Use, Expanded Access and Off-Label Treatments in Mitochondrial DiseaseAll answers today are based on personal...

read more