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Advocacy Update – September 2022: Three Things You Should Ask of Congress as We Wrap Up World Mitochondrial Disease Week
This week, as part of World Mitochondrial Disease Week, UMDF President & CEO Brian Harman caught up with the offices of several members of Congress to talk about mitochondrial disease and the support we need from the federal government. We wrapped up each call...
UMDF Marks World Mitochondrial Disease Week, September 18 – 24, 2022
This coming week, September 18 – 24, marks World Mitochondrial Disease Week. It provides a time for the entire mito community to share our joys, our sorrows, our hopes, and our fears. It’s a week when we can reflect on all we’ve collectively accomplished, while...
UMDF Brings Awareness, Support for Patients and Families on TK2d Tuesday — Sept. 13, 2022
This Tuesday, September 13 is TK2d Tuesday, a day to bring awareness to a rare genetic mitochondrial disease, Thymidine kinase 2 deficiency. It’s estimated up to 2,700 people in the United States are living with TK2d. We thank the many patients, families,...