Calendar of Events
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Northeast PA Support Meeting
Northeast PA Support Meeting
Support Meeting- Northeast PA Third Saturday of each Month- In-Person 10:00pm – 12:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015 You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]
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LHON Assistive Technology
LHON Assistive Technology
This Zoom event is for anyone interested in discussing LHON & Assistive Technology. The event is led by Sara Nappi. Sara is affected by LHON, and she is an Assistive Technology instructor. These events will take place alternating months, on the fourth Monday, at 8 pm Eastern / 5 pm Pacific. To join the Zoom event, […]
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LHON – Teens
LHON – Teens
LHON Teens This call is ONLY for teens (under 18) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Hosts Jeremy Poincenot and Molly Garrone lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use […]
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LHON Onset at Age 60+
LHON Onset at Age 60+
Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older.
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Central Region Virtual Support Meeting
Central Region Virtual Support Meeting
Central Region Virtual Support Meeting UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Thursday, January 26 • 7:00pm – 8:00pm Central Learn […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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UMDF Ask the Mito Doc Webcast Series – MELAS 101
UMDF Ask the Mito Doc Webcast Series – MELAS 101
Join us as we hear from Dr. Michio Hirano and Dr. Fernando Scaglia regarding MELAS - basics about MELAS including current and potential therapies.
LHON – Young Adults
LHON – Young Adults
This call is ONLY for young adults (18 and over) who are affected with LHON vision loss. Consider joining the call to share your experiences with others in a similar situation. Hosts Jeremy Poincenot and Molly Garrone lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Join Details: One option is to use Internet Audio to […]
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