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(Pittsburgh, PA) -- The Foundation for Mitochondrial Medicine (FMM) and the United Mitochondrial Disease Foundation (UMDF) are excited to announce an agreement to combine and advance their synergistic missions of advancing research, education and patient support for treatments of mitochondrial disease. FMM made this decision after careful strategic consideration for opportunities to generate greater [...]
Current Clinical Trials & Studies Primary Mitochondrial Myopathy Clinical Trial Update, the Importance of the Voice of the Patient and a Review of the Healthcare Costs Associated with the Management of Mitochondrial Disease. Additional information and details can be found here. Stealth Mito Community Webinar held on Wednesday, October 24th, 2018 The following is [...]
UMDF Ambassador Program We are very excited to inform you that we have made some improvements regarding support! All support volunteers will now have the official title of “Ambassador.” Ambassadors will have the option of providing support via email and/or phone, planning support events (which may by supportive, educational, or social), or both. [...]
UMDF Literature Quarterly Print Newsletters The UMDF electronically delivers a quarterly newsletter that is loaded with information on the latest medical and scientific news relating to mitochondrial disease. The newsletter also publishes stories about other members and affected people who live with mitochondrial disease. Included in the newsletter are events and fundraising efforts. Newsletter [...]
For Members of the Media Please download our Media Kit for helpful information about mitochondrial disease and the UMDF. For interview requests for other information about the UMDF, please contact the Communications Department Director of Communications - Cliff Gorski Phone: 888-317-UMDF(8633) For General Inquiries The information available [...]
Federal and State Advocacy Opportunities UMDF is committed to empowering our entire community through governmental advocacy. We will work with you on the federal and state level to help educate and impact decisions that address the needs of the entire mitochondrial disease patient community. NEED HELP WITH ADVOCACY [...]
Our Mission in Action UMDF MISSION To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families. Patient and Family Support Patients and families are our focus! When a patient or parent first hears the phrase ‘I suspect [...]