The Senate may soon consider a bill by Senators Graham and Cassidy that would substantially change the Affordable Care Act (ACA). If it passed, it could then be considered by the House in an expedited manner. The UMDF is opposed to this legislation. Many who suffer with mitochondrial disease have historically experienced difficulties obtaining [...]
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FOR IMMEDIATE RELEASE August 7, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 firstname.lastname@example.org UMDF CEO/Executive Director Charles A. Mohan, Jr., Announces 2018 Transition Plans Search will begin in late 2017 for successor to lead mission of UMDF (Pittsburgh, PA) After serving the mitochondrial disease community for more than two decades, United [...]
FOR IMMEDIATE RELEASE August 4, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 email@example.com UMDF RESEARCH GRANT RECIPIENT AWARDS FOUNDATION MAKES $625,000 SCIENTIFIC INVESTMENT TOWARDS TREATMENTS AND CURES (Alexandria, VA) As part of its Roadmap to a Cure Initiative, The United Mitochondrial Disease Foundation (UMDF) announced it invested a total of $625,000 in 2016-2017 [...]
FOR IMMEDIATE RELEASE July 27, 2017 Contact: Clifford Gorski Director of Communications 412.793.8077 firstname.lastname@example.org (Alexandria, VA) At its annual international mitochondrial disease symposium, Mitochondrial Medicine 2017, the United Mitochondrial Disease Foundation recognized four individuals for their efforts to spread awareness about mitochondrial disease. During the June 30, 2017 banquet, the UMDF [...]
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The thoughts and prayers of the entire mitochondrial disease community are with Charlie Gard and his mother and father, Chris Gard and Connie Yates. They have decided to withdraw their request to have little Charlie treated with an experimental therapy. Medical experts have told the family it would not be effective for him. This [...]
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