Archive -Category: Timeline Stories

The first Energy for Life Walkathons were held in the fall of 2010 in Minnesota, Western New York, Kansas City, Delaware Valley, Chicago, and...

The first UMDF Workshop at the NIH was coordinated by former U.S. Senator Barbara Boxer. Senator Boxer, UMDF and Members of the Scientific and...

For the first time, mitochondrial disease and dysfunction was added to the Defense Department Appropriations Bill. This initial inclusion,...

UMDF brought more than 150 patient families to Capitol Hill for its first Day on the Hill advocacy event to speak to their senators and...

The North American Mitochondrial Disease Consortium (NAMDC) was funded to establish a network of clinicians and clinical investigators who...

UMDF launched the Ambassador program to connect patient families with trained volunteers to help navigate their journey.

The first UMDF Mitochondrial Medicine Symposium was held in Cleveland, Ohio, and brought together patient families and the world’s experts in...

Chuck Mohan named first chair of the Board of Trustees. In 2007, Chuck became UMDF’s CEO, until his retirement in 2018.

UMDF forms its first chapter in the Delaware Valley.

Kara Strittmatter was hired as UMDF’s first employee. Its first office was located in Chuck Mohan’s basement in Pittsburgh,...