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UMDF Ask the Mito Doc Webcast Series – Siblings and Mitochondrial Disease – April 2021

April 7 @ 7:30 pm - 8:30 pm

The United Mitochondrial Disease Foundation is pleased to offer the Ask the Mito Doc Webcast Series on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month, we will highlight a specific topic with a short presentation and allow 15-20 minutes for question and answer time with the clinicians.


Click Here to Register

Join us on April 7, 2021
at 4:30 pm Pacific/6:30 pm Central/7:30 pm Eastern 

Printable Agenda

Agenda

UMDF Welcome and Introductions, Cliff Gorski, UMDF Communications Director

Siblings and Mitochondrial Disease 

      • Brief review of the genetics of mitochondrial disease within a family with siblings – Michio Hirano, MD, Columbia University, New York, NY – Click Here for Bio
      • Sibling Perspective Living with Mitochondrial Disease – Devin Shuman, Genetic Counselor, Las Vegas, NV – Click Here for Bio
      • Questions and Answers – Isabel Taylor, UMDF Ambassador and a sibling, will join the panel for Q&A to share experiences.

 


We invite you to submit your questions for the Ask the Mito Doc webcast in advance.  We will take as many questions as possible before, during and after the webinar.  Question and Answer Protocol – Most questions pertinent to the monthly topic are typically addressed during the presentation(s).  Responses to questions not addressed will be sent to the individual who submitted the question.  Please note that not all questions can be answered through this forum.  If you submit a question and do not receive a response, please do not hesitate to contact us at margaret.moore@umdf.org.

Click HERE to Submit a Question! 

We hope you can join us on April 7, 2021.  Registration is required.  After registering, you will receive a confirmation email.  Click HERE to REGISTER!

If you are new to using ZOOM, we suggest that you log in early on your computer or the device you plan to use.  Feel free to log in to the meeting link today.  It is so important that you do this in advance as we may not be able to assist you once the webcast begins.  If you have any questions, contact Margaret Moore at margaret.moore@umdf.org or 412-354-1553.

We are committed to providing needed support for our patient community.  Call our support line at
1-888-900-MITO
 to speak with a member of our patient services team.
Always remember, we are here to help you and your family through your journey!

Special Thanks to our Ask the Mito Doc Webcast Sponsors

Edith L. Trees
Charitable Trust

PTC Therapeutics

Details

Date:
April 7
Time:
7:30 pm - 8:30 pm
Event Categories:
,

Organizer

Kara Strittmatter
Email:
kara@umdf.org
View Organizer Website