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The 6th Annual Carlos Alberto

Memorial Golf Outing

When:
September 13, 2019 at 12:00pm
Where:
Browns Run Country Club – 6855 Sloebig Rd, Middletown, OH 45042
Contact:

Event Details

What:

A golf tournament organized to raise funds for mitochondrial disorders and honor the memory of Carlos Alberto.
One Player (dinner included): $98
Two Players (dinner included): $185
Dinner Only: $30
Click here to purchase tickets!

Why participate:

Golf for a good cause, plus dinner, drinks and awards!

When:

Friday, September 13, 2019

12:00 pm – Registration

1:00 pm – Shotgun start (two-man scramble competition with a handicap system)

6:30 pm – Dinner, raffle and awards

About Carlos Alberto

Described by those who knew him as the happiest little boy with a passion for red cars, Carlos Alberto defied all odds. He was a brave and greatly admired nine-year-old, who never took no for an answer. His stubbornness and conviction led family, friends and even his doctors to believe he had some sort of super powers. Despite suffering from Pearson Syndrome, a rare type of mitochondrial disorder, Carlos Alberto filled every room with laughter, joy and hope.

Research Fund Update

We decided to create the Carlos Alberto Research Fund in Carlos Alberto’s honor and have funded it for the past five years through very special Golf Outings.

This year, we had the honor of awarding the funds raised to Dr. Matt Whiteman from the University of Exeter. Dr. Whiteman has adopted a new approach to the study of mitochondrial health, which may lead to a novel solution to rescue the loss of cellular energy. The hope is that this will get us one step closer to finding a cure to this devastating disease.

None of this would’ve been possible without your support. As you all know, every little bit can go a long way to better understand this mysterious disease and help other children defy odds for as long as possible.

We thank you for being part of this effort and for helping us keep the memory of Carlos Alberto alive.

Contact Us:

Contact Cristina Rue at cristinarueg@gmail.com or (937) 479-9330 for any questions.

And don’t forget to follow us on Facebook here!

 
 
 

 

UMDF MISSION

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.