Many people who are affected with LHON vision also experience Charles Bonnet Syndrome (CBS), the experience of phantom images or hallucinations which co-exist with one’s regular visual experience. They can be simple or complex, static or moving, color or black and white. CBS is under diagnosed, and can cause mental stress for those living with these images.

This is your opportunity to learn more about Charles Bonnet Syndrome from others in the LHON community, and to discuss strategies for managing CBS symptoms or supporting a loved one who may be living with CBS.

Paul Lore will lead this discussion.

This talk from our 2021 LHON Conference provides background information on CBS, as does the attached document.
https://www.youtube.com/watch?v=j2dZM71GbHg&list=PLYlX-8FXeWbDzdB0y-7xSXpLlXSRaSw2U&index=4