Loading Events

« All Events

  • This event has passed.

LHON Sisterhood

March 24, 2021 @ 5:00 pm - 8:00 pm

|Recurring Event (See all)

An event every 2 months that begins at 5:00 pm on day Fourth of the month, repeating until January 27, 2022

Are you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not, you’re invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.

If you are a female who carries an LHON mutation, we invite you to join this call and our Facebook group. If you are not, but you know a woman impacted by LHON in this way who would benefit from this call and Facebook group, and from being part of the LHON Sisterhood community, please invite them to join us!

This meeting takes place at 8:00pm EST/5:00pm PST and is hosted by Scarlet Keolanui Dreifuss.  Reach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions.

There’s also a Facebook group for the LHON Sisterhood – here’s the link:  LHON Sisterhood

Join Details:
You must register in advance for this meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.


March 24, 2021
5:00 pm - 8:00 pm
Event Categories:


Margaret Moore