Teen and Young Adult Virtual Happy Hour Ages 16-35

UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]

LHON – Spanish Speaking Group

LHON Spanish-Speaking Group This call is for Spanish-speakers who are interested in LHON and will be hosted by Scarlet Keolanui Dreifuss.  Reach out to Scarlet Keolanui Dreifuss at scarletkeolanui@gmail.com with any questions. Saturday, February 27, 2021 at 9:00am Pacific/12:00pm Eastern Join Details: One option is to use Internet Audio to call at no charge at: https://zoom.us/j/347809922 […]

LHON – Teens

LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Consider joining the call to share your experiences with others in a similar situation. Tuesday, March 2, 2021 at 5:00pm Pacific/8:00pm Eastern […]

Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)

"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]

LHON Live! Monthly Call

This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:   Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]

Teen and Young Adult Virtual Happy Hour Ages 16-35

UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]

LHON – Young Adults

LHON Young Adults This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Consider joining the call to share your experiences with others in a similar situation. Tuesday, March 9, 2021 at […]

Teen and Young Adult Virtual Happy Hour Ages 16-35

UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]

LHON – California Connect

This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this call. Consider joining the call to share your experiences with others in a similar situation.  Reach out to Bob […]

Dads of LHON-Affected “Kids of All Ages”

The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every month at 8:00pm EST/5:00pm PST.  If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Tony Wright and Jim Tolve host this open-discussion format […]

Milwaukee Virtual Support Meeting 2021

"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]