Oliver’s Army 24hr Soccer Challenge for Leigh’s Syndrome
September 29, 2018
Saturday, September 29th 9:00am – Sunday, September 30th 9:00am – 24 Hours of Soccer!
Austin Sports Academy
275 Lotus Circle, Austin TX 78737
-The game will run continuously throughout the day.
-Brain Juice donations to keep players refueled.
-Raffle tickets $5 for a $100 Franklin’s BBQ Gift Card.
-More information at CLICK HERE!
On Saturday September 29th Austin Sports Academy will play host to a first in its kind charity event for the city of Austin. Two teams will attempt to face off against each on the soccer field for a whole 24 hour period. While rolling on/off substitutions will be encouraged by the two sides, to give their players a rest throughout the day, the same two teams will continue to play for the entire 24 hours.
Why is this epic endurance challenge so important?
Oliver Carroll is the, newly turned, 1 year old son of one of the participating soccer players, Brett Carroll. Oliver was born a perfectly healthy baby boy on September 11th 2017, or so it was first thought. It wasn’t until he was 8 months old that he was diagnosed with a very rare genetic condition called Leigh’s Syndrome, a form of Mitochondrial Disease, affecting 1 in every 40,000 births.
Leigh’s Syndrome is a progressive neurometabolic disorder with a general onset in infancy or childhood. Leigh’s disrupts the mitochondria found in the majority of cells in the human body, so that it becomes impossible to effectively burn food and oxygen to generate energy, which is essential for normal cell function. Over time, without this energy, organs begin to fail. The parts of the body, such as the heart, brain, muscles and lungs, requiring the greatest amounts of energy are the most affected.
Leigh’s Syndrome is incredibly difficult to diagnose. It’s a relatively new medical concept and there aren’t a vast amount of doctors specializing in the field. There are numerous forms of the disease and the severity & type of symptoms differ from person to person.
There is presently no cure for Leigh’s Syndrome. There are treatments and therapies, referred to as the ‘mitochondrial cocktail’, to help prolong life and ease symptoms, but this is something that will never go away for Oliver. There may be periods of sharp decline or periods of temporary restoration of some functions. The long term prognosis of Leigh’s Syndrome is poor. Eventually, Oliver’s condition could lead to heart, kidney, vision, and breathing complications, and may eventually take his life.
The purpose of Oliver’s Army is to raise vital funds and awareness for this little known disease. Our hope is that funds raised will help to ensure that the world’s top mitochondrial scientists are receiving the support they need to perform breakthrough research.
Please help us support United Mitochondrial Disease Foundation by making a donation through this page. The process is fast, easy and secure. Your donations to UMDF play an important role in the development of better diagnoses, effective therapeutics and optimized patient care for sufferer’s of mitochondrial disease.
Thanks so much for your support, it means the world to our family… and please don’t forget to CLICK HERE and send this page to any friends you think might be interested in donating!
(For more information specific to Oliver’s condition please visit his blog site at www.learningtolivewithleighs.com)
To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.