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Save the Date

Date:  Saturday, September 22, 2018, 10:00 a.m. to Noon.   Check-in and networking begins at 9:00 a.m.

UMDF is working with the Mayo Clinic to host a special patient, family and caregiver meeting.

About the Meeting:

Speakers:  Ralitza Gavrilova, MD, and Dr. Eva Morava-Kozicz, MD, PhD, Mayo Clinic; Amy Goldstein, MD, Children’s Hospital of Philadelphia; Amel Karaa, MD, Massachusett’s General Hospital; Sumit Parikh, MD, The Cleveland Clinic; and Brian Harman, UMDF President/CEO

On June 28, 2018, the formation of a first-of-its-kind Mitochondrial Care Network (MCN) was announced at the UMDF Mitochondrial Medicine 2018 in Nashville, TN. This collaborative effort on behalf of patient advocacy groups, the Foundation for Mitochondrial Medicine, MitoAction, the United Mitochondrial Disease Foundation as well as the mitochondrial disease clinician society, The Mitochondrial Medicine Society, has goals to formally unify clinicians who provide medical care to individuals with mitochondrial disease; to define, design and implement best practices in mitochondrial medicine; and to optimize management and care for patients with mitochondrial disease.

Dr. Ralitza Gavrilova has invited Amy Goldstein, MD, to provide an overview of the MCN and what to expect as the network formalizes across the country.  Dr. Gavrilova is organizing this meeting and, in addition to Dr. Goldstein’s overview, she would also like to gain insight from the mitochondrial patient community as to what they need most from a center.   Other speakers, for special Question and Answer Panel, will include Eva Morava-Kozicz, MD, PhD, Amel Karaa, MD and Sumit Parikh, MD.

Location: 

Mayo Clinic Hospital Saint Mary’s Campus

Joseph Building, Room MN-59

For parking information, click here.

Click Here to RSVP.

 

Questions?  Contact Kara@umdf.org.

UMDF MISSION

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.