Events calendar
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Calendar of Events
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LHON Live! Monthly Call
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to […]
1 event,
Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting 2021
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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2 events,
LHON – Teens
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm […]
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us […]
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
2 events,
Energy for Life Walkathon: Detroit
Energy for Life Walkathon: Detroit
Energy for Life Walkathon: Detroit 2021 September 11 @ 10:00 am - 10:30 am Walk your Way this year! You can join us for the 2021 Detroit Energy for Life […]
Energy for Life Walkathon: Indianapolis
Energy for Life Walkathon: Indianapolis
Energy for Life Walkathon: Indianapolis 2021 September 11 @ 11:00 am - 11:30 am Walk your Way this year! You can join us for the 2021 Indianapolis Energy for Life […]
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Energy for Life Walkathon: Chicago
Energy for Life Walkathon: Chicago
Energy for Life Walkathon: Chicago 2021 September 12th @ 10:00 am - 10:30 am Walk your Way this year! You can join us for the 2021 Chicago Energy for Life […]
1 event,
LHON – Young Adults
LHON – Young Adults
LHON Young Adults This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place […]
1 event,
UMDF Ask the Mito Doc Webcast Series – Back to School and Work
UMDF Ask the Mito Doc Webcast Series – Back to School and Work
It is that time of year - going back to school and entering the workplace in the Fall leads to concerns with Cold/Flu and COVID-19 season. Join us to hear from Drs. Mary Kay Koenig and Ebony Beaudoin as they share insights to help you better prepare for the season.
2 events,
Milwaukee Virtual Support Meeting 2021
Milwaukee Virtual Support Meeting 2021
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
2 events,
Western New York Virtual Support Meeting 2021
Western New York Virtual Support Meeting 2021
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. The third Thursday of […]
LHON – New York, New Jersey, Pennsylvania Connect
LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place every other month on the third Thursday of the […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
3 events,
Virtual Energy for Life Walk: Western New York
Virtual Energy for Life Walk: Western New York
Virtual Energy for Life Walkathon: Western New York 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs […]
Energy for Life Walkathon: Kansas City
Energy for Life Walkathon: Kansas City
Energy for Life Walkathon: Kansas City 2021 September 18 @ 10:30 am -11:00 am Walk your Way this year! You can join us for the 2021 Kansas City Energy for […]
Northeast PA Virtual Greet Support Meeting 2021
Northeast PA Virtual Greet Support Meeting 2021
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd […]
2 events,
Global Mitochondrial Disease Awareness Week
UMDF will join with our partners around the globe to spread awareness. Click Here to Help Raise Awareness!
Energy for Life Walkathon – Columbus
Energy for Life Walkathon – Columbus
Energy for Life Walkathon: Columbus 2021 Get registered at www.energyforlifewalk.org/columbus - create a team, join a team or walk as an individual. When: September 19, 2021 Where: TBD Contact: […]
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Patient Participation in Clinical Trials – Reneo Pharmaceuticals
Patient Participation in Clinical Trials – Reneo Pharmaceuticals
Join us for a clinical trial update from Reneo Pharmaceuticals with Dr. Madhu Davies, Medical Director of Reneo Pharmaceuticals...
2 events,
LHON – California Connect
LHON – California Connect
This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm […]
3 events,
TK2d Virtual Support Meeting September 2021
TK2d Virtual Support Meeting September 2021
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to […]
Michigan Virtual Support Meeting 2021
Michigan Virtual Support Meeting 2021
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th […]
2 events,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
3 events,
Energy for Life Walkathon: Southern Wisconsin
Energy for Life Walkathon: Southern Wisconsin
Energy for Life Walkathon: Southern Wisconsin 2021 September 25 @ 10:30 a.m. - 11:30 a.m. Locations: Fox River Park Area #2 (Waukesha, WI) OR anywhere you are comfortable Fox River […]
LHON 3460 Zoom Meeting
LHON 3460 Zoom Meeting
This Zoom Event is for those with an interest in the LHON 3460 mutation. September 25 from 12:00pm – 1:00pm Eastern November 13 from 12:00pm – 1:00pm Eastern Reach out […]
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Navigating Employment/Careers with LHON
Navigating Employment/Careers with LHON
This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Zak Turner. If you are interested in LHON and employment-related matters, you are […]
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LHON Sisterhood
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended […]
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1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
2 events,
Virtual Energy for Life Walkathon – Orlando
Virtual Energy for Life Walkathon – Orlando
Virtual Energy for Life Walkathon: Orlando 2021 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services […]
Virtual Energy for Life Walk & 5K: National
Virtual Energy for Life Walk & 5K: National
Walk your Way this year! You can join us for the 2021 National Energy for Life Walk & 5K taking place on October 2, 2021. You can now participate in […]
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