Events calendar
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Calendar of Events
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LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
2 events,
LHON – Georgia/Florida Connect
LHON – Georgia/Florida Connect
Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST […]
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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UMDF Mitochondrial Medicine 2022 in Phoenix AZ
Join us in Phoenix, Arizona as we bring together the best minds in mitochondrial medicine and the patients we serve. Virtual options are available for Ask the Mito Doc Sessions!
1 event,
UMDF Mitochondrial Medicine 2022 in Phoenix AZ
Join us in Phoenix, Arizona as we bring together the best minds in mitochondrial medicine and the patients we serve. Virtual options are available for Ask the Mito Doc Sessions!
3 events,
UMDF Mitochondrial Medicine 2022 in Phoenix AZ
Join us in Phoenix, Arizona as we bring together the best minds in mitochondrial medicine and the patients we serve. Virtual options are available for Ask the Mito Doc Sessions!
NY – Spring for Energy Walk
NY – Spring for Energy Walk
Spring for Energy - Saucy Hog BBQ Fundraiser Friday, June 10, 2022 Saucy Hog BBQ will donate a portion of all sales from 3:30 p.m. to 6 p.m. to the […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
1 event,
UMDF Mitochondrial Medicine 2022 in Phoenix AZ
Join us in Phoenix, Arizona as we bring together the best minds in mitochondrial medicine and the patients we serve. Virtual options are available for Ask the Mito Doc Sessions!
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1 event,
LHON – Texas/Oklahoma/Arkansas/Louisiana Connect
LHON – Texas/Oklahoma/Arkansas/Louisiana Connect
NOTE: Since the meeting is intended for those living in Texas/Oklahoma/Arkansas/Louisiana, this virtual meeting is set in Central Time. This call for those living in Texas, Oklahoma, Arkansas, and Louisiana […]
1 event,
LHON – New England Connect
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. This call takes place quarterly on the second Tuesday of the month, at 7:30pm Eastern. […]
2 events,
Milwaukee Virtual Support Meeting
Milwaukee Virtual Support Meeting
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]
Dads of LHON-Affected “Kids of All Ages”
Dads of LHON-Affected “Kids of All Ages”
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The monthly call for Dads of LHON-Affected "Kids of All Ages" takes […]
2 events,
Western New York Support Meeting
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE: Beginning November 18, 2021, we will be […]
LHON – Teens
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com […]
2 events,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
1 event,
Northeast PA Virtual Support Group Meeting
Northeast PA Virtual Support Group Meeting
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd […]
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2 events,
LHON – Midwest Connect
LHON – Midwest Connect
This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation. This call […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
1 event,
LHON – Southwest Connect
LHON – Southwest Connect
LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. […]
1 event,
LHON – Young Adults
LHON – Young Adults
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by […]
3 events,
TK2d Virtual Support Meeting June 2022
TK2d Virtual Support Meeting June 2022
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to […]
Michigan Virtual Support Meeting
Michigan Virtual Support Meeting
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th […]
LHON – New York, New Jersey, Pennsylvania Connect
LHON – New York, New Jersey, Pennsylvania Connect
Please Join Us! This call for those living in New York, New Jersey, or Pennsylvania with an interest in LHON takes place quarterly on the third Thursday of the month […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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LHON Assistive Technology Meeting
LHON Assistive Technology Meeting
This call takes bi-monthly the fourth Monday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Sara Nappi. If you are interested in LHON and […]
2 events,
Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update
Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update
MELAS CLINICAL TRIAL UPDATE Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update Webinar Hosted by UMDF Tuesday, June 28, 2022 8:00 am EDT In a webinar hosted by the […]
Guthrie Symposium on Newborn Screening & Metabolic Disorders – Buffalo, NY
Guthrie Symposium on Newborn Screening & Metabolic Disorders – Buffalo, NY
2nd Annual Robert Guthrie Symposium Tuesday, June 28, 2022 Click here for more information.
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Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
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