Events calendar
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Calendar of Events
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Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
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Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us […]
2 events,
LHON Live! Monthly Call
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to […]
UMDF Ask the Mito Doc Webcast Series – Siblings and Mitochondrial Disease – April 2021
UMDF Ask the Mito Doc Webcast Series – Siblings and Mitochondrial Disease – April 2021
National Siblings Day is coming up in April...If you have siblings in your family with mitochondrial disease, join us on April 7 to hear from Dr. Michio Hirano as he gives an overview of the genetics within a family.
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UMDF Clinical Trial Webcast – Astellas Update – April 8
UMDF Clinical Trial Webcast – Astellas Update – April 8
Join us for a clinical trial update from Astellas...
1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
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Energy for Life Walkathon – Walk your Way Houston
When: April 10, 2021 Where: Anywhere you'd like! Contact: anne.simonsen@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate […]
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1 event,
LHON – Texas & Oklahoma Connect
LHON – Texas & Oklahoma Connect
LHON - Texas & Oklahoma Connect This call for those living in Texas and Oklahoma with an interest in LHON takes place every other month on the second Monday of […]
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LHON – New England Connect
LHON – New England Connect
This is a call for those living in New England with an interest in LHON. This call takes place every other month on the second Tuesday of the month, at […]
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On The Border Take-Out Fundraiser!
On The Border Take-Out Fundraiser!
On The Border Take-Out Fundraiser! Donating Back 20% to Energy for Life Walk/Run Your Way Dallas-Fort Worth Wednesday April 14, 2021 11:00am-10:00pm 1121 I-20 West Arlington, TX RSVP by April […]
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LHON – Pacific Northwest Connect
LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place every other month on the third Thursday of the month. […]
LHON – New York Connect
LHON – New York Connect
This call for those living in New York with an interest in LHON takes place every other month on the third Thursday of the month at 7:00pm EST. Hosts Jim […]
2 events,
Western New York Virtual Support Meeting 2021
Western New York Virtual Support Meeting 2021
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. Friday, April 16, 2021 […]
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
2 events,
Energy for Life Walk & 5K – Walk or Run Your Way Dallas-Fort Worth
When: April 17, 2021 Where: Anywhere you'd like! Contact: anne.simonsen@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate […]
Northeast PA Virtual Greet Support Meeting 2021
Northeast PA Virtual Greet Support Meeting 2021
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd […]
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Dads of LHON-Affected “Kids of All Ages”
Dads of LHON-Affected “Kids of All Ages”
The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every month at 8:00pm EST/5:00pm PST. If you're a dad of someone […]
Milwaukee Virtual Support Meeting 2021
Milwaukee Virtual Support Meeting 2021
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]
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Michigan Virtual Support Meeting 2021
Michigan Virtual Support Meeting 2021
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th […]
1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
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TK2 d Virtual Support Meeting April 2021
TK2 d Virtual Support Meeting April 2021
TK2 "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to […]
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Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]