Education
World Mitochondrial Disease Awareness Week
Join friends and families from around the world on September 18-24, 2023 to raise awareness of mitochondrial disease (mito) on a global scale through educational, fundraising and advocacy activities.
CHOP 4th annual Mitochondrial Medicine Education Day
Children’s Hospital of Philadelphia (CHOP) is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Speakers will include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania and other organizations. Click Here for Details!
UMDF Ask the Mito Doc Webcast Series – Best Practices within a Mitochondrial Care Network Team – Navigating Patient Care
We are exciting to kick off the fall Ask the Mito Doc Monthly webcast series with one of the Mitochondrial Care Network Teams - join us and have your questions ready!
UMDF and MEPAN – Special Virtual Meet the Researcher Webcast
Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]
CHOP 4th Annual Next Generation Therapeutics Virtual Panel
For the past three years, the Mitochondrial Medicine team from Children’s Hospital of Philadelphia (CHOP) has convened a virtual Next Generation Therapeutics panel to spark discussion between clinicians, industry leaders, patients and families affected by mitochondrial disease. CHOP is thrilled to host the 4th Annual Next Generation Therapeutics Virtual Panel, presented by UCB, from 10 a.m. to noon […]
UMDF Ask the Mito Doc Webcast Series – Diet, Nutrition and Nutraceuticals for the Mitochondrial Disease Patient
Diet and Nutrition is extremely important to the mitochondrial disease patient. Join us to hear from Dr. Mark Tarnopolsky, an expert in diet, nutrition, and nutraceuticals.
UMDF Ask the Mito Doc Webcast Series – Special Coffee & Conversation with Mito Docs and Ambassadors
Join us for a special Ask the Mito Doc with Coffee & Conversation Breakout Rooms - informal round table discussion format with a Mito Clinician(s), UMDF Ambassador(s), and UMDF Staff.
UMDF Ask the Mito Doc Webcast Series – Wrap-up 2023 with Mito Docs!
Join us to wrap-up the year with five mitochondrial specialists - each will share learnings from the year and answer questions from attendees!
Navigating Education with LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This Zoom event is your chance to connect with other students, educators, parents and other sighted supporters to discuss Navigating Education with LHON. Please feel free to invite anyone who would benefit from this discussion to join […]
UMDF Ask the Mito Doc Webcast Series – What is Primary Mitochondrial Myopathy (PMM) and What Disorders Fall Under PMM?
Join us as we kick off 2024 and learn about Primary Mitochondrial Myopathies (PMM) and the disorders that fall under PMM...with Dr. Amel Karaa.
UMDF Ask the Mito Doc Webcast Series – ICU/Anesthesia and Mitochondrial Disease
Join us to learn and prepare yourself and/or your loved one for possible ICU/Anesthesia Managment.
UMDF Ask the Mito Doc Webcast Series – Clinical Trial Readiness: Preparing for 2024 and Beyond
Join us to learn what we, as a patient advocacy community, can do to further drug development.