AACT Webinar Series: Pain Management

AACT (Adult Advisory Council Team) Webinar Series: Pain Management for Adults with Mitochondrial Diseases Tuesday, November 26, 2019 8:00 pm - 9:00 pm Eastern Time Join Zoom Meeting https://umdf.zoom.us/j/519013014 *** Use this link to join from your computer Meeting ID: 519 013 014 For other options to join: One tap mobile +16468769923,,519013014# US (New York) +16699006833,,519013014# US […]

UMDF Support Webinar Series: KSS/CPEO Virtual Support Meeting

https://www.umdf.org/event/ksscpeo   UMDF Support Webinar Series: Disease Specific Support- KSS/CPEO Do you have KSS or CPEO? If so, please join us for an hour of VIRTUAL SUPPORT! We hope to get to know each other, share resources and make connections. Thursday, January 16, 2020 12:00 Noon and 8:00 pm ET To register for the 12:00 […]

UMDF Support Meeting – Chicago February 2020

Panera Bread Oak Brook 1600 16TH STREET, Oak Brook, IL

UMDF Chicago Invites You To A Support Meeting LOCATION: Panera Bread 1600 16th Street OAK BROOK, IL 60523 Sunday February 9,2020 12:00 PM-1:30 PM For questions or to RSVP, please email your Regional Coordinator Anne Simonsen at: anne.simonsen@umdf.org

AACT Webinar Series: Mitochondrial Disease of Non-Genetic Origin

  AACT (Adult Advisory Council Team) Webinar Series: Mitochondrial Disease of Non-Genetic Origin Kendall Wallace, PhD Wednesday, February 19, 2020 8:00 pm - 9:00 pm Eastern Time You must register for this event! You are invited to a Zoom webinar. When: Feb 19, 2020 08:00 PM Eastern Time (US and Canada) Topic: AACT Webinar Series: Mitochondrial Disease […]

Rare Disease Day (MN) – University of Minnesota

UMDF leaders and ambassadors will be participating in Rare Disease Day hosted by the University of Minnesota on Friday, February 28th.  Members of the community are welcome to attend with an RSVP by Friday, February 14th at this link. Event Information Friday, February 28, 2020 9:00 a.m. - 2:30 p.m. McNamara Alumni Center, 200 Oak […]

Rare Disease Day -Wisconsin

Studio You Paint It Pottery 6670 Odana Rd - Market Square, Madison, WI

Please join the Wisconsin Rare Action Network Saturday, February 29, 2020 12:00pm - 3:00pm Gardner Room Wehr Nature Center 9701 W. College Avenue Franklin, WI 53132 Join patients, families, caregivers, and other rare disease stakeholders to learn about the challenges rare disease patients face. You will also learn how you can make a difference in […]

Postponed – Patient, Family and Caregiver Meeting in Denver, CO

POSTPONED UNTIL FURTHER NOTICE:  The health and well-being of the mitochondrial disease patient community is a top concern for the United Mitochondrial Disease Foundation (UMDF) and Miracles for Mito.  It is for that reason that UMDF has decided to postpone our Family Meeting scheduled for April 15, 2020. UMDF is closely monitoring the latest information […]

Part 2 – UMDF Special “Ask the Mito Doc” – Coronavirus

The health and well-being of the mitochondrial disease patient community is a top concern for the United Mitochondrial Disease Foundation (UMDF). It is for that reason that UMDF has postponed and/or cancelled many of our education/support type LIVE activities. UMDF is closely monitoring the latest information regarding the coronavirus (COVID19) from the Centers for Disease […]

COVID-19: Finding Joy and Gratitude in Times of Anxiety and Isolation

The health and well-being of the mitochondrial disease patient community is a top concern for the United Mitochondrial Disease Foundation (UMDF). It is for that reason that UMDF has postponed and/or cancelled many of our education/support type LIVE activities. UMDF is closely monitoring the latest information regarding the coronavirus (COVID19) from the Centers for Disease […]

UMDF Ask the Mito Doc Webcast Series – Back to School

The United Mitochondrial Disease Foundation is pleased to announce that the Ask the Mito Doc Webcast Series will continue on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month, we will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer […]

UMDF Ask the Mito Doc Webcast Series – Handling COVID in a Mito World

The United Mitochondrial Disease Foundation is pleased to announce that the Ask the Mito Doc Webcast Series will continue on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month, we will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer […]

UMDF Ask the Mito Doc Webcast Series – Making the Most of the Holidays and Stress Research

The United Mitochondrial Disease Foundation is pleased to announce that the Ask the Mito Doc Webcast Series will continue on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month, we will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer […]