Calendar of Events
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LHON – Young Adults
LHON – Young Adults
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second […]
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LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
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Navigating Education & LHON
Navigating Education & LHON
NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Scarlet Keolanui Dreifuss. If you are interested in LHON and education-related matters, you are invited to join. Reach out to […]
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Moms of LHON-Affected “Kids of All Ages” (Saturday)
Moms of LHON-Affected “Kids of All Ages” (Saturday)
This additional bimonthly call is also for Moms of LHON-Affected "Kids of All Ages" takes place on the third Saturday of every month at 12:00pm EST/9:00am PST.
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