Recurring

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Recurring

Navigating Education & LHON

NOTE: Unless specific to a geographic location – all LHON virtual meetings will be set in Eastern Time. This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Scarlet Keolanui Dreifuss. If you are interested in LHON and education-related matters, you are invited to join.  Reach out to […]

LHON MS Zoom Event

LHON MS Zoom Event This Zoom event is for those in the LHON community who also live with MS. Our goal is to develop connections among those who have both LHON and MS. This call takes place quarterly on select dates.  Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Thursday, May 20, 2021 […]

Recurring

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]

Recurring

LHON – Teens

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of […]

LHON – Young Adults

LHON Young Adults This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the second Tuesday of the month unless otherwise noted. Reach out to Molly Garrone at mollyeknox@gmail.com with […]

Recurring

LHON – California Connect

NOTE: Since the meeting is intended for those living in California, this virtual meeting is set in Pacific Time. This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this […]

LHON 3460 Zoom Meeting

This Zoom Event is for those with an interest in the LHON 3460 mutation. September 25 from 12:00pm – 1:00pm Eastern November 13 from 12:00pm – 1:00pm Eastern Reach out to Lissa Poincenot at lhonpoince@aol.com with any questions. Join Details: One option is to use Internet Audio to call at no charge at: https://zoom.us/j/347809922 Meeting ID:  347 809 […]

LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by […]

Recurring

LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome.  You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call:  […]