This is a call for those living in New England with an interest in LHON. This call takes place quarterly on the second Tuesday of the month, at 7:30pm Eastern. […]

This is a call for those living in New England with an interest in LHON.  Consider joining the call to share your experiences with others in a similar situation.

This call is for those living in New York, New Jersey, or Pennsylvania with an interest in LHON. Hosts Jim and Mary Tolve facilitate this call. Consider joining the call and sharing your experiences with others in a similar situation.

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call […]

LHON - Southwest Connect This call for those living in the Southwest with an interest in LHON takes place quarterly on the third Tuesday of the month at 8:00pm Pacific. […]

Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.

This call is ONLY for teens (under 18) who are affected with LHON vision loss. Hosts Jeremy Poincenot and Molly Garrone lead this call. This call takes place at 5:00pm PST/8:00pm EST every other month on the first Tuesday of the month for an hour and a half unless otherwise noted.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

Were you affected by LHON at age 60 or older? Would you like to network with others in a similar situation? If so, you are welcome to join our Zoom networking event exclusively for individuals affected at age 60 or older. 

This call is ONLY for young adults (18 and over) who are affected with LHON vision loss.

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. The bimonthly call for Dads of LHON-Affected "Kids of All Ages" takes place […]