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LHON Sisterhood

Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended […]

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LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

LHON Spouses Zoom Event

This call is for spouses (or similar) of someone affected by LHON. Jerrie Lore and Mandy Quinn will host this event. There's also a Facebook group for Spouses of LHON-Affected People […]

LHON – Teens

LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com […]

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LHON – Young Adults

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for all young adults (18 and over) affected by […]

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LHON – Pacific Northwest Connect

NOTE: Since the meeting is for Pacific Northwest, this virtual meeting is set in Pacific Time. This is a call for those living in the Pacific Northwest with an interest […]

Navigating Employment with LHON

This call takes place quarterly the fourth Wednesday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Zak Turner. If you are interested in LHON […]

LHON Assistive Technology Meeting

This call takes bi-monthly the fourth Monday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Sara Nappi. If you are interested in LHON and […]

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LHON Live! Monthly Call

NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]

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LHON – New England Connect

This is a call for those living in New England with an interest in LHON. This call takes place quarterly on the second Tuesday of the month, at 7:30pm Eastern. […]

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LHON – Georgia/Florida Connect

Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST […]