LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. This call takes place every other month on the third Thursday of the month. […]
LHON – New York Connect
This call for those living in New York with an interest in LHON takes place every other month on the third Thursday of the month at 7:00pm EST. Hosts Jim […]
Western New York Virtual Support Meeting 2021
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. Friday, April 16, 2021 […]
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
Energy for Life Walk & 5K – Walk or Run Your Way Dallas-Fort Worth
When: April 17, 2021 Where: Anywhere you'd like! Contact: anne.simonsen@umdf.org Register Today As part of this event, you will receive a personal fundraising page when you register. Register today Donate […]
Northeast PA Virtual Greet Support Meeting 2021
PA"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd […]
Dads of LHON-Affected “Kids of All Ages”
The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every month at 8:00pm EST/5:00pm PST. If you're a dad of someone […]
Milwaukee Virtual Support Meeting 2021
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! […]
Michigan Virtual Support Meeting 2021
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th […]
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]
TK2d Virtual Support Meeting April 2021
TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to […]
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free […]