Clinical Trial For Patients with PDCD

Clinical Trial For Patients With Genetically Confirmed Pyruvate Dehydrogenase Complex (PDC) Registration for this new clinical trial, Trial of Dichloroacetate in Pyruvate Dehydrogenase Complex Deficiency: (DCA/PDCD), is now open for patients who are ages 6 months through 17. This is a study of an investigational drug called sodium dichloroacetate (DCA). Investigational means that the study […]

TK2 Virtual Support Meeting September 2020

TK2 "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine kinase 2) ? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! TK2 "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2)? […]

UMDF Ask the Mito Doc Webcast Series – Handling COVID in a Mito World

The United Mitochondrial Disease Foundation is pleased to announce that the Ask the Mito Doc Webcast Series will continue on a monthly basis to keep our patients and families connected to the mitochondrial medical community.  Each month, we will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer […]

Virtual Energy for Life Walk: Detroit

Virtual Energy for Life Walkathon: Detroit 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]

Virtual Energy for Life Walk: Indianapolis

Virtual Energy for Life Walkathon: Indianapolis 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]

Virtual Energy for Life Walk: Western New York

Virtual Energy for Life Walkathon: Western New York 2020   The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and […]

Virtual Energy for Life Walk: Chicago

Virtual Energy for Life Walkathon: Chicago 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]

Virtual Energy for Life Walkathon – Columbus

Virtual Energy for Life Walkathon: Columbus 2020   The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]

MELAS Virtual Support Meeting September 2020

MELAS"Virtual" Support Meeting Are you or your loved one impacted by MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes)? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us for a VIRTUAL MEETING! Monday, September 14, 2020 8:00 - 9:00 p.m. […]

Indianapolis Virtual Support Meeting 2020

"Virtual" Support Meeting Indianapolis Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. The third Tuesday of each Month Jul 21, 2020 Aug 18, 2020 Sep 15, 2020 Oct 20, 2020 Nov 17, 2020 7:00 - 8:00pm ET You must register in advance […]

Milwaukee Virtual Support Meeting 2020

"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]

Western New York Virtual Support Meeting 2020

"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** Please note that we are using a new link to register for this […]