Energy for Life Walkathon – Charlotte

Mint Museum - Randolph 2730 Randolph Road, Charlotte, NC, United States

Energy for Life Walkathon: Charlotte 2022 Get registered at www.energyforlifewalk.org/charlotte - create a team, join a team or walk as an individual. When: November 5, 2022 Where: The Mint Museum […]

TK2d Virtual Support Meeting November 2022

TK2d "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2) deficiency? If so, please join us for a Virtual Support Meeting! We will get to […]

OH – Songs for Sarah 2022

Turtle Creek Tavern 5571 N Hamilton Road, Columbus, OH, United States

Date: Friday, November 11, 2022 Location: Turtle Creek Tavern, Columbus Ohio Start Time: 8:00 PM Performers: School of Rock (Gahanna) House Band Glare Keith Cousineau tOd and Bad Ideas Benefiting […]

Cousins for a Cure Gala – NJ

The Mansion on Main Street 3000 Main Street, Voorhees Township, NJ, United States

special fundraising event Thursday, November 17, 2022 6:00 PM The Mansion on Main Street 3000 Main Street Voorhees Township, NJ 08043 The Cousins for a Cure event will benefit the […]

Navigating Employment with LHON

This call takes place quarterly the fourth Wednesday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Zak Turner. If you are interested in LHON […]

LHON – Teens

LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com […]