Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE: Beginning January 19, 2023, we will be […]
Cousins for a Cure Gala – NJ
The Mansion on Main Street 3000 Main Street, Voorhees Township, NJspecial fundraising event Thursday, November 17, 2022 6:00 PM The Mansion on Main Street 3000 Main Street Voorhees Township, NJ 08043 The Cousins for a Cure event will benefit the […]
LHON – Pacific Northwest Connect
This is a call for those living in the Pacific Northwest with an interest in LHON. Consider joining the call to share your experiences with others in a similar situation.
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Northeast PA Support Meeting
Support Meeting- Northeast PA *** We will be resuming in-person support meetings this month!!*** Saturday, January 21 • 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education […]
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
Navigating Employment with LHON
This call takes place quarterly the fourth Wednesday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Zak Turner. If you are interested in LHON […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It […]
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com […]
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all […]
LHON – Georgia/Florida Connect
Please Join Us! This call for those living in Georgia and Florida with an interest in LHON takes place quarterly on the second Thursday of the month at 8:00pm EST […]