Energy for Life Walk: Kansas City

Lowenstein Park 1901 NW Lowenstein Dr, Lee's Summit, MO

Energy for Life Walkathon: Kansas City 2023   When: September 16, 2023 Where: Lowenstein Park, Shelters 1 & 2 901 NW Lowenstein Drive | Lee's Summit, MO 64081 Contact: events@umdf.org Schedule of Events 9:00 am - Walk Registration & Family Fun Activities 10:00 am - Opening Ceremony 10:30 am - 1 Mile Walk Starts 12:00 […]

Event Series Northeast PA Virtual Greet Support Meeting

Northeast PA Support Meeting

  Support Meeting- Northeast PA Third Saturday of each Month- In-Person 1:00pm – 3:00pm Eastern St. Luke's Hospital Priscilla Payne Hurd Education Room Room 104 801 Ostrum Street Bethlehem, PA 18015   You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! […]

Energy for Life Walk: Columbus

Wolfe Park Shelter House 105 Park Drive, Columbus, Ohio

Energy for Life Walkathon: Columbus 2023   When: September 17, 2023 Where: Wolfe Park Shelterhouse 105 Park Drive | Columbus, OH 43209 Contact: jordan.rogers@umdf.org Schedule of Events 9:00 am - Walk Registration 9:45 am - Opening Ceremony 10:00 am - 1 Mile Walk Starts Register Today Register today Donate now Register to walk with us […]

CHOP 4th annual Mitochondrial Medicine Education Day

Children’s Hospital of Philadelphia (CHOP) is hosting this full-day virtual event for clinicians, researchers and others who care for patients with complex mitochondrial disorders. Speakers will include world-renowned mitochondrial disease clinicians and researchers from CHOP, the University of Pennsylvania and other organizations. Click Here for Details!

Event Series LHON – Midwest Connect

LHON – Midwest Connect

This call is for those living in the Midwest with an interest in LHON. Consider joining the call and sharing your experiences with others in a similar situation.  This call takes place quarterly on the Third Monday of each month at 7pm-8pm Central/8:00pm-9:00pm Eastern. March 21 from 8:00pm – 9:00pm Eastern June 20 from 8:00pm […]

Parent and Caregiver Virtual Support Meeting

Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]

UMDF and MEPAN – Special Virtual Meet the Researcher Webcast

Join us Thursday, September 21 at 11:00 AM ET/10:00 AM CT/8:00 AM PT Click Here to Register The UMDF is working with our MEPAN families to organize this special virtual webcast to share information from this past June's meeting in Charlotte. Speakers and/or scientific attendees with an interest or experience with Mito Transfer/Fatty Acid Synthesis […]

Event Series Western New York Support Meeting

Western New York Support Meeting

"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. We are now meeting in-person.  Please let us know if you will be attending by registering HERE. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** […]