Calendar of Events
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Clinical Trial For Patients with PDCD
Clinical Trial For Patients with PDCD
Clinical Trial For Patients With Genetically Confirmed Pyruvate Dehydrogenase Complex (PDC) Registration for this new clinical trial, Trial of Dichloroacetate in Pyruvate Dehydrogenase Complex Deficiency: (DCA/PDCD), is now open for patients who are ages 6 months through 17. This is a study of an investigational drug called sodium dichloroacetate (DCA). Investigational means that the study […]
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TK2 Virtual Support Meeting September 2020
TK2 Virtual Support Meeting September 2020
TK2 "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine kinase 2) ? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! TK2 "Virtual" Support Meeting Are you or your loved one impacted by TK2 (Thymidine Kinase 2)? […]
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UMDF Ask the Mito Doc Webcast Series – Handling COVID in a Mito World
UMDF Ask the Mito Doc Webcast Series – Handling COVID in a Mito World
The United Mitochondrial Disease Foundation is pleased to announce that the Ask the Mito Doc Webcast Series will continue on a monthly basis to keep our patients and families connected to the mitochondrial medical community. Each month, we will highlight a specific topic with a short presentation and allow 20-30 minutes for question and answer […]
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Virtual Energy for Life Walk: Detroit
Virtual Energy for Life Walk: Detroit
Virtual Energy for Life Walkathon: Detroit 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]
Virtual Energy for Life Walk: Indianapolis
Virtual Energy for Life Walk: Indianapolis
Virtual Energy for Life Walkathon: Indianapolis 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]
Virtual Energy for Life Walk: Western New York
Virtual Energy for Life Walk: Western New York
Virtual Energy for Life Walkathon: Western New York 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and […]
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Virtual Energy for Life Walk: Chicago
Virtual Energy for Life Walk: Chicago
Virtual Energy for Life Walkathon: Chicago 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]
Virtual Energy for Life Walkathon – Columbus
Virtual Energy for Life Walkathon – Columbus
Virtual Energy for Life Walkathon: Columbus 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]
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MELAS Virtual Support Meeting September 2020
MELAS Virtual Support Meeting September 2020
MELAS"Virtual" Support Meeting Are you or your loved one impacted by MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes)? If so, please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us for a VIRTUAL MEETING! Monday, September 14, 2020 8:00 - 9:00 p.m. […]
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Indianapolis Virtual Support Meeting 2020
Indianapolis Virtual Support Meeting 2020
"Virtual" Support Meeting Indianapolis Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. The third Tuesday of each Month Jul 21, 2020 Aug 18, 2020 Sep 15, 2020 Oct 20, 2020 Nov 17, 2020 7:00 - 8:00pm ET You must register in advance […]
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Milwaukee Virtual Support Meeting 2020
Milwaukee Virtual Support Meeting 2020
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]
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Western New York Virtual Support Meeting 2020
Western New York Virtual Support Meeting 2020
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** Please note that we are using a new link to register for this […]
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Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET May 29, 2020 Jun 5, 2020 Jun 12, 2020 Jun 19, 2020 Jun 26, 2020 Jul 3, 2020 Jul 10, 2020 Jul 17, 2020 Jul 24, 2020 Jul 31, 2020 Aug 7, 2020 Aug 14, 2020 Aug 21, 2020 […]
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EFL Virtual Walkathon: Houston
EFL Virtual Walkathon: Houston
Virtual Energy for Life Walkathon: Houston 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we will […]
Virtual Energy for Life Walk: Kansas City
Virtual Energy for Life Walk: Kansas City
Virtual Energy for Life Walkathon: Kansas City 2020 The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, we […]
Northeast PA Virtual Greet Support Meeting 2020
Northeast PA Virtual Greet Support Meeting 2020
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! Jun 20, 2020 01:00 PM Jul 18, 2020 01:00 PM Aug 15, 2020 01:00 PM Sep 19, 2020 01:00 PM Oct […]
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Philadelphia Virtual Support Meeting September 2020
Philadelphia Virtual Support Meeting September 2020
"Virtual" Support Meeting- Philadelphia Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. September 29, 2020 7:00pm - 8:00pm ET Register in advance for this meeting. Register HERE. After registering, you will receive a confirmation email containing information about joining the meeting. UMDF's commitment […]
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Michigan Virtual Support Meeting September 2020
Michigan Virtual Support Meeting September 2020
"Virtual" Support Meeting Michigan Join us for a VIRTUAL MEET-UP! You are not alone. Join us to share coping tips and connect with others. Wednesday, September 30, 2020 7:30 - 8:30pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation email containing information about joining the […]
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EFL Walk & 5K Run: Dallas-Fort Worth
EFL Walk & 5K Run: Dallas-Fort Worth
Energy for Life Walk & 5K Run: Dallas-Fort Worth October 3, 2020 River Legacy Park 701 NW Green Oaks Blvd Arlington, TX 76006 7:30 am - Runner Registration & Packet Pickup 8:30 am - 5K Run Starts 8:30 am - Walker Registration, Raffle & Silent Auction 9:45 am - Event Opening Ceremony & Runner Awards […]
Virtual Energy for Life Walk & 5K – National
Virtual Energy for Life Walk & 5K – National
Virtual Energy for Life Walk and 5K: National The COVID-19 pandemic has changed life as we know it, but it did not change the need for funding vital programs and services that support our patient families and accelerate the pace of research. For the health and safety of our patient families, teams and fundraisers, […]