Calendar of Events
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LHON – Teens
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Consider joining the call to share your experiences with others in a similar situation. Tuesday, March 2, 2021 at 5:00pm Pacific/8:00pm Eastern […]
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
1 event,
LHON Live! Monthly Call
LHON Live! Monthly Call
This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: Jessica Loomer and Andy Marks Reach out to Jessica Loomer at jessica.loomer@gmail.com or Andy Marks at marks.andy.c@gmail.com with […]
1 event,
Adult Virtual Support Meeting March 2021
Adult Virtual Support Meeting March 2021
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! Thursday, March 4, 2021 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining the meeting. […]
1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]
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2 events,
LHON – Young Adults
LHON – Young Adults
LHON Young Adults This call is for all young adults (18 and over) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. Consider joining the call to share your experiences with others in a similar situation. Tuesday, March 9, 2021 at […]
Minnesota Virtual Support Meeting March 2021
Minnesota Virtual Support Meeting March 2021
Minnesota "Virtual" Support Meeting Do you live in Minnesota? Please join us for a Virtual Support Meeting! We will get to know each other, share resources and build community! Join us for a VIRTUAL MEETING! Tuesday, March 9, 2021 7:00 - 8:00pm CT You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
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1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]
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1 event,
LHON – California Connect
LHON – California Connect
This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this call. Consider joining the call to share your experiences with others in a similar situation. Reach out to Bob […]
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Dads of LHON-Affected “Kids of All Ages”
Dads of LHON-Affected “Kids of All Ages”
The monthly call for Dads of LHON-Affected "Kids of All Ages" takes place on the third Wednesday of every month at 8:00pm EST/5:00pm PST. If you're a dad of someone affected by LHON, consider joining the call and sharing your experiences with others in a similar situation. Tony Wright and Jim Tolve host this open-discussion format […]
Milwaukee Virtual Support Meeting 2021
Milwaukee Virtual Support Meeting 2021
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]
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Western New York Virtual Support Meeting 2021
Western New York Virtual Support Meeting 2021
"Virtual" Support Meeting- Western New York Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. The third Thursday of each month 6:00pm - 7:00pm Register in advance for this meeting. *** Please note that we are using a new link to register for this […]
2 events,
Attn: Clinicians – Progressive Mitochondrial Myopathy CME Event
Attn: Clinicians – Progressive Mitochondrial Myopathy CME Event
Through a special collaborative partnership with PlatformQ Health Education, LLC and the National Organization for Rare Disorders, Inc, Mito University is pleased to offer another great educational opportunity for clinicians. The following program will be LIVE on March 19, 2021 and available on-demand through March 9, 2022. Program Title: Progressive Myopathy: Could It Be a Genetic […]
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]
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Northeast PA Virtual Greet Support Meeting 2021
Northeast PA Virtual Greet Support Meeting 2021
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! 1:00pm - 3:00pm You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
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Navigating Employment/Careers with LHON
Navigating Employment/Careers with LHON
This call takes place a few times each year at 8:00pm EST/5:00pm PST and is hosted by Zak Turner. If you are interested in LHON and employment-related matters, you are invited to join. Reach out to Zak Turner at zakturner24@gmail.com with any questions. Tuesday, March 23, 2021 at 5:00pm Pacific/8:00pm Eastern Tuesday, June 22, 2021 […]
UMDF Ask the Mito Doc Webcast Series – Navigating Patient Care Billing – March 2021
UMDF Ask the Mito Doc Webcast Series – Navigating Patient Care Billing – March 2021
As a mitochondrial patient, navigating medical care is difficult and understanding patient care billing adds one more layer of challenges. Join us March 23 to gain perspective from various experts and ask questions to hopefully ease the process.
1 event,
LHON Sisterhood
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you're affected by LHON symptoms or not, you're invited to be part of the LHON Sisterhood! This community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by […]
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Michigan Virtual Support Meeting 2021
Michigan Virtual Support Meeting 2021
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th Thursday of each month. 7:00 - 8:00pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]
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1 event,
Teen and Young Adult Virtual Happy Hour Ages 16-35
Teen and Young Adult Virtual Happy Hour Ages 16-35
UMDF Teen/Young Adult "Virtual Happy Hour" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Happy Hour! Join us for this alcohol-free "Virtual Happy Hour"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! […]