Calendar of Events
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1 event,
LHON Assistive Technology Meeting
LHON Assistive Technology Meeting
This call takes bi-monthly the fourth Monday of each month at 8:00pm ET/5:00pm PT unless otherwise noted and is hosted by Sara Nappi. If you are interested in LHON and assistive technology, you are invited to join. Monday, April 25, 2022 at 5:00pm Pacific/8:00pm Eastern Monday, June 27, 2022 at 5:00pm Pacific/8:00pm Eastern Monday, August […]
2 events,
Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update
Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update
MELAS CLINICAL TRIAL UPDATE Cyclerion CY6463 Phase 2a MELAS Study Clinical Data Update Webinar Hosted by UMDF Tuesday, June 28, 2022 8:00 am EDT In a webinar hosted by the United Mitochondrial Disease Foundation (UMDF), Cyclerion will discuss promising Phase 2a clinical study of CY6463, a first-in-class CNS- penetrant sGC stimulator, in participants with Mitochondrial Encephalomyopathy, Lactic Acidosis […]
Guthrie Symposium on Newborn Screening & Metabolic Disorders – Buffalo, NY
Guthrie Symposium on Newborn Screening & Metabolic Disorders – Buffalo, NY
2nd Annual Robert Guthrie Symposium Tuesday, June 28, 2022 Click here for more information.
1 event,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
0 events,
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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1 event,
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
3 events,
California Virtual Support Group Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Wednesday, July 6 • 10:00pm – 11:00am Pacific Learn more & register here. […]
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
1 event,
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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1 event,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
0 events,
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
1 event,
Northeast PA Virtual Support Group Meeting
Northeast PA Virtual Support Group Meeting
"Virtual" Support Meeting- Northeast PA Join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. We will meet the 3rd Saturday of each month! 1:00pm - 3:00pm You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
0 events,
1 event,
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting
Parent and Caregiver Virtual Support Meeting Hello Parents and Caregivers impacted by Mitochondrial Disease! Please join us for a Parent and Caregiver Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The THIRD Monday of every month! 8:00pm-9:00pm ET Register HERE After registering, you […]
0 events,
3 events,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
Milwaukee Virtual Support Meeting
Milwaukee Virtual Support Meeting
"Virtual" Support Meeting Milwaukee Join us for a VIRTUAL SUPPORT MEETING! You are not alone. Join us to share coping tips and connect with others. We want to meet YOU! The 3rd Wednesday of every month 6:30 - 8:30pm CT Register in advance for this meeting: *** Please note that we are using a new […]
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Moms of LHON-Affected “Kids of All Ages” (Wednesday)
Join us for the Moms of LHON-Affected "Kids of All Ages" virtual meeting.
1 event,
Western New York Support Meeting
Western New York Support Meeting
"Virtual AND In-Person" Support Meeting- Western New York You are not alone. Join us to share coping tips and connect with others. NOTE: Beginning November 18, 2021, we will be gathering in-person for select months. You will be receiving e-blasts with such updates. In-person information is noted below. The third Thursday of each month 6:00pm […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
0 events,
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1 event,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
1 event,
Michigan Virtual Support Meeting
Michigan Virtual Support Meeting
Michigan "Virtual" Support Meeting Join us for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others. We meet on the 4th Thursday of each month. 7:00 - 8:00pm ET You must register in advance for this meeting. Register HERE After registering, you will receive a confirmation […]
1 event,
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
0 events,
0 events,
1 event,
California Virtual Support Group Meeting
California Virtual Support Group Meeting
UMDF hosts regular virtual support group meetings and events for patients and families affected by mitochondrial disease. Join us to gain coping tips, share your story and connect with others. We hope you will attend and see that you are not alone. Monday, March 7 • 10:00pm – 11:00am Pacific Learn more & register here. […]
1 event,
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
Heartland States Virtual Support Meeting ( St. Louis Area, MO,IL,KS,NE)
"Virtual" Support Meeting- Heartland States St. Louis area invites our friends in Missouri, Illinois, Kansas and Nebraska to join us for a VIRTUAL MEETING! You are not alone. Join us to share coping tips and connect with others. First Tuesday of every month 7:00pm - 8:00pm CT Register in advance HERE After registering, you will […]
2 events,
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
LHON Live! Monthly Call
LHON Live! Monthly Call
NOTE: Unless specific to a geographic location - all LHON virtual meetings will be set in Eastern Time. This call is for everyone interested in LHON...those affected, carriers, or sighted supporters...all are welcome. You can speak up and share your thoughts, or just listen to what others have to say...It's your call! Hosts for the Call: […]
1 event,
Adult Virtual Support Meeting
Adult Virtual Support Meeting
Adult Virtual Support Meeting Hello Adults impacted by Mitochondrial Disease! Please join us for an Adult Virtual Support Meeting. We will get to know each other, share resources, and build community! Join us for a VIRTUAL MEETING! The FIRST Thursday of every month! 8:00pm-9:00pm ET Register HERE After registering, you will receive a confirmation email containing information about joining […]
2 events,
Run 4 Raley
Run 4 Raley
15TH ANNUAL RUN4RALEY TWILIGHT 5K RUN, 1 MILE WALK AND KIDS MITO DASH The Streets of Philo Washington Street Philo, IL 61864 What you need to know about our Event... Run4Raley is a 5k Race with a Kids Mito Dash and 1 Mile Walk. The Kids Mito Dash will be 1/4 mile long and ribbons […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
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