Week of Events
LHON – Teens
LHON – Teens
LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call. Reach out to Molly Garrone at mollyeknox@gmail.com with any questions. The calls takes place from 5:00pm-6:00pm Pacific/8:00pm-9:00pm Eastern - calendar has an Eastern Time setting for this event. Consider joining the call […]
mitoSHARE Office Hours – Patient Registry Weekly Support
mitoSHARE Office Hours – Patient Registry Weekly Support
Are you new to mitoSHARE? Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]
Teen and Young Adult Virtual Meet-Up Ages 16-35
Teen and Young Adult Virtual Meet-Up Ages 16-35
UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]
Cavan’s Walk, Run & Family Fun Day
Cavan’s Walk, Run & Family Fun Day
Ann MacArthur Primary School Fields 100 Ryefield Road Locust Valley, NY 11560 Special thanks to our co-sponsors: Locust Valley SEPTA and the Middle School Parent Council Registration Information: Adult Walker/Runner - $25.00 16 years to 99+ years old Includes all event-day activities *Fundraise an additional $25 and earn an event T-shirt!* Youth Walker/Runner - $15.00 4 […]