LHON Teens This call is for all teens (under 18) affected by LHON. Hosts Jeremy Poincenot and Molly Garrone will lead this call.  Reach out to Molly Garrone at mollyeknox@gmail.com with any questions.  The calls takes place from 5:00pm-6:00pm Pacific/8:00pm-9:00pm Eastern - calendar has an Eastern Time setting for this event. Consider joining the call […]

Are you new to mitoSHARE?  Do you want to learn about our worldwide patient-populated registry, understand its applications, features, and overall function? Join our Patient Registry Team for Office Hours, every Wednesday 1:00-2:00pm EST. Whether you have already joined or are interested in joining mitoSHARE, log in using the Zoom link below and our team […]

UMDF Teen/Young Adult "Virtual Meet-Up" Teens and Young Adults Age 16-35 Every Friday! 8:00pm ET Join us EVERY Friday for a VIRTUAL Meet-Up! Join us for this "Virtual Meet-Up"! It is tough being stuck at home, but you are not alone. Let's get together, share coping tips and have some FUN! UMDF Support Ambassadors, Kristi […]

Ann MacArthur Primary School Fields 100 Ryefield Road Locust Valley, NY 11560 Special thanks to our co-sponsors: Locust Valley SEPTA and the Middle School Parent Council Registration Information: Adult Walker/Runner - $25.00 16 years to 99+ years old Includes all event-day activities *Fundraise an additional $25 and earn an event T-shirt!* Youth Walker/Runner - $15.00 4 […]