Please allow us to introduce our remarkable teenager, Chad. He has a rare type of mitochondrial disease called Creatine Transport Deficiency.
Chad has faced challenges that no child should have to endure. He has had feeding tubes, skin and muscle biopsies, MRIs, MRSs, blood work and countless other tests. He has had many hospital stays and emergency room visits, which continue today.
Because of his disease, Chad is intellectually delayed, speech and language impaired, and suffers from seizures and debilitating migraines. In spite of all his setbacks, Chad is a happy kid who can give you the brightest smile and the biggest hug.
In honor of Chad and his continued fight against this disease, the Cooper family has established the Champions for Chad Research Fund. Through the United Mitochondrial Disease Foundation (UMDF), money donated to this fund goes to research in Chad’s name.
The UMDF was formed by families affected by mitochondrial disease. Like the Cooper family, the UMDF founders wanted to help others affected by the disorder. The Foundation provides support to families and funds research into mitochondrial disease.
Mitochondria produce more than 90 percent of the body’s energy. When these tiny parts of the cell can’t do their job, the body doesn’t get the energy it needs, resulting in a wide range of debilitating and sometimes fatal symptoms. Every thirty minutes, a child is born who will develop a mitochondrial disease by age 10. Most of these affected children will not survive beyond their teenage years.
Through research, the medical world one day will have the resources to help children like Chad win the battle against mitochondrial disease. Until then, please help the Cooper family and the UMDF bring “Hope.Energy.Life” to everyone affected by mitochondrial disease by donating to the Champions for Chad Research Fund.