Community Impact

UMDF

ABOUT UMDF

The United Mitochondrial Disease Foundation (UMDF) promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support for affected individuals and families. Since 1996, the UMDF has funded more than $13 million in the best and most promising research, making it the leading non-governmental contributor of grants focused solely on mitochondrial disease.

UMDF provides critical information to patient families fighting mitochondrial disease. Patient families connect through regional support meetings and at Mitochondrial Medicine, UMDF’s annual symposium where patients, clinicians and scientists gather and interact.

BOARD OF TRUSTEES

The United Mitochondrial Disease Foundation’s Board of Trustees represents volunteer leaders who are working to advance the mission of the UMDF and who are dedicated to the patient families we serve.

John Kieffer
Chairman

Brent Fields
Vice Chair

Bill Kallaos, Jr
Treasurer

Sharon Shaw
Secretary

Alicia Palladino, JD, PhD.
Trustee-At-Large

Bruce Cohen, MD
Chair, SMAB

Shari Albertson

Michael Friedberg

Patrick Kelley

Todd Lacey

Richard Leach

Annette
St. Pierre-Mackoul, MD

Charles Mohan, Jr.
Founder and Chair Emeritus

UMDF Welcomes Todd Lacey

In FY19, the United Mitochondrial Disease Foundation welcomed one new member to its Board of Trustees. We are grateful to our volunteer leaders that invest their time and resources in the UMDF Mission.

Mr. Todd Lacey joined the UMDF Board of Trustees in April 2019. The Athens, GA, resident brings his financial and business marketing expertise to the board as he currently serves as Chief Business Development Officer at Stadion. In this role, he is responsible for overseeing the relationships with current recordkeeping partners as well as identifying and developing new channels of distribution and product development within the retirement business. Todd has spent his entire 20-year career in the retirement industry. Prior to joining Stadion, Todd held various roles at AEGON/Transamerica, including, EVP of Strategy & Corporate Development for Investments & Retirement, EVP of Business Development for the US retirement business and Senior Managing Director of Latin America. Prior to Transamerica, Todd was Founder & President of The (k)larity Group, a retirement plan advisory firm that was one of three finalists for the 2010 Plan Sponsor Retirement Plan Adviser Team of the Year Award.

Todd is an active contributor to both the retirement industry and his community having served as co-chair of the NAPA 401(k) Summit and board member of the ASPPA Benefits Council of Atlanta. Todd previously served as Chairman of the Board of the Foundation for Mitochondrial Medicine (FMM). In 2019, FMM and UMDF combined to advance their synergistic missions of advancing research, education and patient support for treatments of mitochondrial disease.

Todd has a B.S. in psychology from Miami University in Oxford, OH. Todd and his wife are the parents of two teenage daughters, one who is suspected of having mitochondrial disease.